Re: THANK YOU SO MUCH TO ALL MOMS WHO RESPONDED

[Guest guest]

Tosha,

Thanks for sharing your story about . It is very touching.

I am so glad that you have come to this group. You are really looking out

for your daughter. I hope she does well. With you guiding her, I'm

confident that she will.

Best wishes,

P.S.: My " silver lining " in all this for me is that it is helping me to

look out for myself health-wise (including taking better care of myself

overall), and know better how to interface with the medical profession (tho

I suspect I'm a bit too insistent for them -- being on top of them can be

perceived as challenging or pestering). It has been a great education thus

far, and I am still learning.

At 11:31 AM 8/12/2003, you wrote:

>I want to say thank you to all of you who have responded to my post.

[Guest guest]

Tosha I am so happy to hear will not receive RAI!! And I can also

appreciate how much your daughter means to you. My son was born the year

after his brother, who was stillborn. I almost lost my son near the end of

the pregnancy and I just thought " this can't happen again " .

Like I said, endos are more experienced in diabetes than in Graves. They

treat many more cases of diabetes than they do Graves. I'm not saying it's

right but they just don't know how to treat us as there aren't as many of

us. If there were as many Graves patients as diabetes patients endo would be

treating us differently as they'd be more experienced in treating us.

in MA, USA

Diagnosed w/Graves, March 1997

Glad I've refused RAI Treatment!!!

On lose dose of PTU (2 50 mg. per day)

(was in remission for three years 2000-2003)

THANK YOU SO MUCH TO ALL MOMS WHO RESPONDED

I want to say thank you to all of you who have responded to my post. You

have given me a great lot of information that I have been reading for hours

now. I will NOT give her the RAI, thanks to all of you angels who cared

enough to tell me this was not the way. I must say that I've always just

trusted that the doctors knew what they were talking about because of their

training and such. I never thought they would try and steer me toward

something that is so dangerous for my 9 year old daughter. is my

little sunshine...my miracle baby. When I was only 6 months pregnant with

her, I lost all my amniotic fluid and had to be in the hospital for a week

while the doctors did everything they could to get me to abort her because

they said her chances weren't good with no amniotic fluid. The doctor even

said they would " get rid of it " if I ended up losing her and that no funeral

was necessary. I should have learned then to not trust the doctors. I

didn't listen to them and I held onto my precious baby girl in my

womb...praying every night. I had to be on complete bed rest the last three

months and the doctor's couldn't understand it or believe it, but I started

getting my amniotic fluid back and my miracle baby made it into this world

after all. She brightens up a room. She cheers everyone up. She works

like you wouldn't believe...always trying to do good and make people happy

and feel good. Sometimes I worry about that because I worry someone will

try and take advantage of her one day because she truly is a child of God

and is so innocent and sweet.

Anyway, I will do everything in my power to keep my baby safe. Please

everyone, keep us in your prayers.

Thank you again,

[Guest guest]

Hi tosha,

Glad that you decided to give medication a try with your daughter.

She is a very lucky little girl to have you as a mother.

Continue to keep us posted on her, and how you all are dealing with this

disease.

I have found that support of family, and friends is important to

obtaining remission.

I know that is waht helped me.

you'll be in my prayers.

Take care.

R. Green

________________________________________________________________

The best thing to hit the internet in years - Juno SpeedBand!

Surf the web up to FIVE TIMES FASTER!

Only $14.95/ month - visit www.juno.com to sign up today!