Guest guest Posted May 27, 2003 Report Share Posted May 27, 2003 Hi I have a 10 year old with Graves Disease. She found out in February 2003. She started on 4 tablets of carbimazole Then on to 2 tablets which made her go under. Now she is on 1 tablet of carbimazole. She had a blood test on Friday and we find out the results tomorrow. I have written down a few of my own questions and was wondering if I can have some ideas from this group on some questions I should ask. Thank you Carole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hi, Adults usually start out on 30 mg carbimazole, and the dose is reduced after 6-8 weeks. Children start out on a lower dose, depending on their size, but usually about half the dose as adults. And while most adults can eventually be maintained on 2.5-10.0mg carbimazole, children rarely need more than 2.5-10.0 mg as a maintenance dose, sometimes less. You want to make sure your doctor is testing FT4, FT3 and TSH. TSH can take a very long time to rise so you don't need to be concerned if it's still low. FT4 and FT3 are the best tests for monitoring her carbimazole dose. Ideally, she should be euthyroid and not have symptoms of either hyper or hypothryodism on the dose she's on. Your doctor will need to measure TSI sometime for a baseline level and then later on to tell when she is in remission and able to stop meds. take care, elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hi, Adults usually start out on 30 mg carbimazole, and the dose is reduced after 6-8 weeks. Children start out on a lower dose, depending on their size, but usually about half the dose as adults. And while most adults can eventually be maintained on 2.5-10.0mg carbimazole, children rarely need more than 2.5-10.0 mg as a maintenance dose, sometimes less. You want to make sure your doctor is testing FT4, FT3 and TSH. TSH can take a very long time to rise so you don't need to be concerned if it's still low. FT4 and FT3 are the best tests for monitoring her carbimazole dose. Ideally, she should be euthyroid and not have symptoms of either hyper or hypothryodism on the dose she's on. Your doctor will need to measure TSI sometime for a baseline level and then later on to tell when she is in remission and able to stop meds. take care, elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Hi Elaine and Thank you for your replies. I didn't read the emails before I went to the Doctor my fault because I left it to late to ask if anyone had any idea what I should ask the doctor but each time I go I have a list of questions so I will check them all out next time I visit the Doctor. Our visit to the hospital was a bit different this time we got to see a lady from the endocrine team who I found easier to talk to. She also showed me my daughters tests and is going to copy them all for me and send them to me. Her T3 is not right yet but the TSH was okay. She has changed her medication again to 1 1/2 tablets of carbimazole. Our next appointment isn't until August but if I have any worries I am to see my GP and I can ask for a blood test. How come when you visit the Doctor you end up with more questions and only think to ask them when your at home. I wanted the blood tests results so I could learn to understand them by putting them on here and I was told to realise that all testing labs where different. We have 3 Labs in Christchurch and they all test differently so how different would the actual test results be to the final outcome if all Lab results are different? Thank you both again Carole Re: Questions? Hi, Adults usually start out on 30 mg carbimazole, and the dose is reduced after 6-8 weeks. Children start out on a lower dose, depending on their size, but usually about half the dose as adults. And while most adults can eventually be maintained on 2.5-10.0mg carbimazole, children rarely need more than 2.5-10.0 mg as a maintenance dose, sometimes less. You want to make sure your doctor is testing FT4, FT3 and TSH. TSH can take a very long time to rise so you don't need to be concerned if it's still low. FT4 and FT3 are the best tests for monitoring her carbimazole dose. Ideally, she should be euthyroid and not have symptoms of either hyper or hypothryodism on the dose she's on. Your doctor will need to measure TSI sometime for a baseline level and then later on to tell when she is in remission and able to stop meds. take care, elaine Quote Link to comment Share on other sites More sharing options...
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