Canadian Mom needs someone to talk to

[Guest guest]

Hi All,

I was wondering if one of our Canadian parents could reach out to a

mother that just called me.

--Her name is Lee Ann. She lives in Alberta, 2 hours away from

Calgary.

--Her 3 year old son weighs 16 pounds and is 31 " tall.

--He was diagnosed with RSS at 17 months, tested POSITIVE for UPD-7

--Her pediatrician seems to be leaving his medical care up to the

parents, and says that Americans are much more aggressive about

treating RSS. SHe has not yet decided whether she wants to fill her

Periactin prescription. Her son's doctor also said that GHT is an

option, but is not pushing for it.

I think Lee Ann would like to talk with another Canadian parent,

since you will understand how the health system works better.

Please email me at rss2katy@... if you can reach out to her.

I'll give you her phone number/email (although their computer

crashed).

I am also trying to encourage her to join the listserve.

THANKS!

kATY

[Guest guest]

Hi Katy!

I would love to talk with this mom!!! We're also about 2 hours from

Calgary so depending on which direction of the city she's located we could

be very close or else only a few hours apart. I also have the calling plan

that's for 24 hours a day so it's not an extra burden for us. Our kids also

seem very similar with Olivia being 18lbs and 33 " at 4.75 years old.

Please give her my phone # if she want's to make the first step or you can

send me her's if long distance calling is a problem for her during the

day... Boy, I hope you can understand this, I'm a little excited right now!

Phone #

Sylvan Lake, AB

Leah, mom to 9 and Olivia 4.75

>

>Reply-To: RSS-Support

>To: RSS-Support

>Subject: Canadian Mom needs someone to talk to

>Date: Thu, 05 Aug 2004 15:18:37 -0000

>

>Hi All,

>

>I was wondering if one of our Canadian parents could reach out to a

>mother that just called me.

>

>--Her name is Lee Ann. She lives in Alberta, 2 hours away from

>Calgary.

>--Her 3 year old son weighs 16 pounds and is 31 " tall.

>--He was diagnosed with RSS at 17 months, tested POSITIVE for UPD-7

>--Her pediatrician seems to be leaving his medical care up to the

>parents, and says that Americans are much more aggressive about

>treating RSS. SHe has not yet decided whether she wants to fill her

>Periactin prescription. Her son's doctor also said that GHT is an

>option, but is not pushing for it.

>

>I think Lee Ann would like to talk with another Canadian parent,

>since you will understand how the health system works better.

>

>Please email me at rss2katy@... if you can reach out to her.

>I'll give you her phone number/email (although their computer

>crashed).

>

>I am also trying to encourage her to join the listserve.

>

>THANKS!

>kATY

>

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[Guest guest]

Katy - connect them with Bell's parents. They live in

Ontario, Canada (come to convention every year) and is also

UPD7. Jenn

> Hi All,

>

> I was wondering if one of our Canadian parents could reach out to

a

> mother that just called me.

>

> --Her name is Lee Ann. She lives in Alberta, 2 hours away from

> Calgary.

> --Her 3 year old son weighs 16 pounds and is 31 " tall.

> --He was diagnosed with RSS at 17 months, tested POSITIVE for UPD-7

> --Her pediatrician seems to be leaving his medical care up to the

> parents, and says that Americans are much more aggressive about

> treating RSS. SHe has not yet decided whether she wants to fill

her

> Periactin prescription. Her son's doctor also said that GHT is an

> option, but is not pushing for it.

>

> I think Lee Ann would like to talk with another Canadian parent,

> since you will understand how the health system works better.

>

> Please email me at rss2katy@h... if you can reach out to her.

> I'll give you her phone number/email (although their computer

> crashed).

>

> I am also trying to encourage her to join the listserve.

>

> THANKS!

> kATY