Re: Listserve- RSS/SGA Walkathon

[Guest guest]

Great Idea ladies! I love it! Count us in! already emailed !

We were thinking of doing a walk-a-thon to raise money for the

convention, but we are planning another rootbeer float fundraiser

also! It was a great success for us! In front of Wal-Mart was a great

place to have it too!!!

I hope we all raise a ton of money for our kids!!!

Blessings,

Carmen

[Guest guest]

,

This is so funny because we were planning on doing this! I called for the

kit today. Hope all is well.

, Jonah's mom

Listserve- RSS/SGA Walkathon

> Hello!

>

> All of us on this listserve have a child that has either RSS or

> SGA. We all want the same things - the best for our own child, and

> for similar children around the world.

>

> In discussions, we have all talked about wanting to provide tapes of

> the MAGIC convention free to physicians, and at a minimal cost to

> families. We want to be able to distribute the upcoming Guidebook

> to physicians and families. And most importantly, when is Dr.

> Harbison going to publish her data!!! Well, we want to hire a

> researcher/writer to help Dr. H with that project.

>

> But this takes money. Many of you have asked Katy and me how you

> can help. And have explained that your financial situations

> prohibit you from donating money. We understand.

>

> Well, we have the answer!!!! We need you to " walk. " In October,

> families all over the United States will be walking on different

> days, at different times, all to raise money for MAGIC and for the

> RSS/SGA division. 50% of the funds we raise will go to help put on

> our annual MAGIC convention, and the other 50% of the funds will go

> to our own RSS/SGA division!!!!

>

> It is VERY easy for you.

>

> 1. You pick whatever day and time in October 2004 that works

> for you.

>

> 2. You decide the type of walk and how long you will walk. Do

> you want to walk laps around a track or go for a long walk through a

> park or through your town? (Some adults are even walking in their

> own home on a treadmill!)

>

> 3. Call MAGIC and get a " Participation Kit. " This kit has

> EVERYTHING you need!!!! It has a step-by-step instructions sheet,

> it has a MAGIC pledge sheet, it has a walker's bib that you can pin

> to your shirt, it has sample pledge appeal letters that you can

> customize for family and friends, and it has sample thank you

> notes. This doesn't get any easier than this!!!

>

> Remember, all pledges/donations from people are tax deductible to

> them!!!!

>

> You can use this information to gather pledges for every mile you

> walk, and then you collect them at the end. My daughter is

> going to walk (I will go along to assist her, and my husband and son

> will be her " crew " as my son won't last 1 mile before whining).

> wrote her own letter to family and friends. Involve your

> children! Push kids in strollers. and I plan on taking

> LOTS of breaks - for snacks, lunch and ice cream, or just to play

> along the way. It doesn't matter how long it takes us, just how far

> we walk!!!!

>

> Please help!!!! There are 12 divisions within MAGIC, and we really

> want to show MAGIC and the other 11 divisions what our division can

> do!

>

> Please email MAGIC now (mary@... ) or call Monday

> toll free 1-800-3MAGIC3 and ask for your Participation Kit now.

>

> If you are not a member of MAGIC yet, take this chance! Several

> families have donated money to MAGIC to allow for free memberships

> for 2005. Call MAGIC now, explain your financial need, become a

> member and then WALK. Help us help educate the world about RSS and

> SGA.

>

> Please!!!!

> Salem and Katy Frissora, RSS/SGA Division Co-Consultants

>

>

>

>

>

>

>

>

[Guest guest]

Hi and all,

I'd love to walk. Is there a way to get in touch w/other Northern California

families who might want to walk on the same day / in the same place?

(We are in Sacramento, anyone interested? It should cool down by then:)

Kathy (Jack, 5, non-RSS, and Willie, 3 1/2, RSS, 23.2 lbs, 33 " , Periactin and

Zantac)