Re: Small 6 year old, any ideas? -

[Guest guest]

Hi ,

My g-daughter, Aidan, is very small for her age, too. She turned 4 at the

end of July, weighs 32# and is 36 " tall. There are RSS kids on this list

serve that are the same age/size or bigger than she is! Her weight is still

on the growth charts, but she has fallen off the height chart. The Ped says

that there is nothing to worry about. She is just going to be small.

Aidan is also a horrible eater. She did fine when she was on baby food, but

once she moved over to table food, she got MUCH pickier!! She won't touch

any type of veggie, will only eat apples (and they have to be peeled) as far

as fruit goes, and is not a big fan of any kind of meat. We only get meat

down her IF she has a dipping sauce.

The ped told us to substitute V-8 Splash for the veggies, 100% juice for the

fruit, and just keep on trying new foods with no pressure on making her eat.

I have to say, it is VERY frustrating!!

Pat (g-ma to , RSS, 33 months, 22.5#, 31.8 " , G-Tube)

[Guest guest]

Hi Pat,

Thanks for the response! From what you said, Aidan reminds me of

Skye! Did you know that cookies have crust? But only on the opposite

end he bites into. I didn't until my son informed me. We are

thinking he is just small and the doc has thought that but she

really wants to make sure because he is 4 (about) standard deviations

underneath his predicted height based upon his dad and me and with

everything going on with Autumn. I'm not usually a worrier, but now

the question of 'what if something is wrong' is going on in my head.

It must be the doctor overload. It's nice to know he's not the only

small kid....because between his size and Autumn's size, I get

endless comments no matter where I go. They just cant' beleive he's

6 and she's 8 mos. Some peoples rudeness will start affecting him

soon, and I'm dreading it. I can usually play it off but he's

starting to pick up on things. Just to let you know, I just got V8

splash from Kroger..thanks for advice.

Your fellow Ohioan

> Hi ,

>

> My g-daughter, Aidan, is very small for her age, too. She turned 4

at the

> end of July, weighs 32# and is 36 " tall. There are RSS kids on this

list

> serve that are the same age/size or bigger than she is! Her weight

is still

> on the growth charts, but she has fallen off the height chart. The

Ped says

> that there is nothing to worry about. She is just going to be small.

>

> Aidan is also a horrible eater. She did fine when she was on baby

food, but

> once she moved over to table food, she got MUCH pickier!! She won't

touch

> any type of veggie, will only eat apples (and they have to be

peeled) as far

> as fruit goes, and is not a big fan of any kind of meat. We only

get meat

> down her IF she has a dipping sauce.

>

> The ped told us to substitute V-8 Splash for the veggies, 100%

juice for the

> fruit, and just keep on trying new foods with no pressure on making

her eat.

>

> I have to say, it is VERY frustrating!!

> Pat (g-ma to , RSS, 33 months, 22.5#, 31.8 " , G-Tube)

[Guest guest]

Hey !

Where in Ohio do you live??

I know what you about Dr overload! LOL I do all the research for . We

use the " world-renown " Cleveland Clinic for , and still the Drs here

don't seem to understand RSS at all. So I research whatever problems we're

having, and attempt to find solutions that we can try. I then make

suggestions to the Drs, and that is the direction we usually go in! LOL

Might as well have an MD behind my name since B was born! LOL

Like you, I never questioned Aidan's " smallness " , but now that I know more

than I ever wanted to about GH, GHD, and growth disorders, I keep thinking

" what if?? " we've missed something! Sometimes, ignorance is bliss!

Pat (g-ma to , RSS, 33 months, 22.5#, 31.8 " , G-Tube)

[Guest guest]

Hi Pat,

I live in Trenton Ohio. It is in the middle of Dayton and

Cincinnati. We go to Cincinnati CHildren's Hospital and their

outpatiet offices for Autumn. I know what you mean how ignorance is

bliss! I feel the same way, both with Autumn and Skye. Autumn used

to just be small, but now the possibilities are endless! As for

SKye, I don't know. I do all sorts of research for Autumn also, but

nothing is officially found out with her yet. The doc is pretty

convinced of RSS...she has a wide broad forehead but not very

extreme, she has a triangular face, and they say she " looks " it. Her

top of her head measures the 50% but her face is small. It's not

that noticable in some pictures and in others it is very noticable.

There was no growth measured in utero past 32 weeks and I had her at

38 1/2 at 5lbs 6 oz HEr body is in the negative percentile! She has

possible kidney problems, protein malnutrition, and who knows what

else. But you know what? She is thriving in other ways even though

she is FTT. She is sitting, crawling all over the house, and acts

like any other 8 1/2 month old. She's so adorable. Children's

hospital seems to be good but I am thinking a lot of that DR H. I

have a stepmother that lives about 3 hours from the city. I might

see if I could arrange a trip sometime in the future. Good luck with

all your research with . He's a cutie. Sounds like you're a

great grandma!

> Hey !

>

> Where in Ohio do you live??

>

> I know what you about Dr overload! LOL I do all the research for

. We

> use the " world-renown " Cleveland Clinic for , and still the

Drs here

> don't seem to understand RSS at all. So I research whatever

problems we're

> having, and attempt to find solutions that we can try. I then make

> suggestions to the Drs, and that is the direction we usually go in!

LOL

> Might as well have an MD behind my name since B was born! LOL

>

> Like you, I never questioned Aidan's " smallness " , but now that I

know more

> than I ever wanted to about GH, GHD, and growth disorders, I keep

thinking

> " what if?? " we've missed something! Sometimes, ignorance is bliss!

>

> Pat (g-ma to , RSS, 33 months, 22.5#, 31.8 " , G-Tube)