Re: Info the allergy testing, delayed gastric emptying, etc.

[Guest guest]

Jen,

You are awesome! I am very interested in the possible pyeloroplasy

recommendation. When I asked Harbison/spigland at convention, they

said they would not recommend surgery on a child who is symptomatic,

but gaining. But, my thought is if a surgery can solve the problem,

then why not? But, then again, they also said that even after the

triple procedure, kids still show delayed gut motitility. aaaaaaagh.

I bet is having the lactose breath hydrogen test since they

are worried about a milk allergy. Matt's GI said that the gold

standard for H.Pylori is a biopsy, so I bet that will be one of the

things they do during the scope itself.

Thanks for all your info! When do you start all of this?

Beth

> > Jen,

> >

> > I am really curious about this breath hydrogen test. It sounds

> very

> > similar to the testing for H. Pylori, very non invasive and

easy.

> > Why does the GI feel is having more gas and bloating?

Why

> > does he think it is related to a bacteria, and just not the

> delayed

> > gastric emptying. Very curious for selfish reasons. From what

I

> > can find on the net, sounds like the symptoms for the gas

> producing

> > bacteria is the same as the H. Pylori which Matt has a history

of.

> >

> > Also, on the net they talk about different breath hydrogen

tests,

> > rice, lactose, etc. What kind are you doing?

> >

> > Beth

[Guest guest]

,

I would definitely be interested in getting another's point of view, especially

is he is

reknowned in this field!

Kim C.

> I know this is a big topic. He recommended the " top dog in gut

> dysmotility " a Carlo something. Don't have it in front of me, at

> Cleveland Children's Hospital. Said we should get him to speak at

> next year's convention. He may not have a lot of experience with

> RSS/SGA kids, but he is the world reknowned guy in gut dysmotility.

> And Dr. Fred said he is the funniest guy and a great speaker.

>

> Thoughts???? Would this be interesting to anyone???? Or a repeat

> of the Spigland/Harbison/Ursea presentation from last year.

>

>

>

>

> > Jen,

> >

> > I am really curious about this breath hydrogen test. It sounds

> very

> > similar to the testing for H. Pylori, very non invasive and easy.

> > Why does the GI feel is having more gas and bloating? Why

> > does he think it is related to a bacteria, and just not the

> delayed

> > gastric emptying. Very curious for selfish reasons. From what I

> > can find on the net, sounds like the symptoms for the gas

> producing

> > bacteria is the same as the H. Pylori which Matt has a history of.

> >

> > Also, on the net they talk about different breath hydrogen tests,

> > rice, lactose, etc. What kind are you doing?

> >

> > Beth

[Guest guest]

Beth - blood tests in a week after being off the periactin, then

Nov8-9th are the hospital tests... Harbison/Spigland told me the

same thing, no pyloroplasty for someone like who is still

slowly gaining. But Dr. Fred brought up the other side of the coin -

- if the delayed gastric emptying is causing GI damage due to

bacterial overgrowth, a pyloroplasty may be better. Then flip the

coin over again, with Spigland saying that even with a pyloroplasty,

some of these kids' emptying times are still delayed.

What the heck do we do???? Keep gathering data.... jennifer

> > > Jen,

> > >

> > > I am really curious about this breath hydrogen test. It

sounds

> > very

> > > similar to the testing for H. Pylori, very non invasive and

> easy.

> > > Why does the GI feel is having more gas and bloating?

> Why

> > > does he think it is related to a bacteria, and just not the

> > delayed

> > > gastric emptying. Very curious for selfish reasons. From

what

> I

> > > can find on the net, sounds like the symptoms for the gas

> > producing

> > > bacteria is the same as the H. Pylori which Matt has a history

> of.

> > >

> > > Also, on the net they talk about different breath hydrogen

> tests,

> > > rice, lactose, etc. What kind are you doing?

> > >

> > > Beth

[Guest guest]

i also think this wouldbe a great speacker for us to heart

cara mom to jacob

Kacey171 wrote:

,

I would definitely be interested in getting another's point of view, especially

is he is

reknowned in this field!

Kim C.

> I know this is a big topic. He recommended the " top dog in gut

> dysmotility " a Carlo something. Don't have it in front of me, at

> Cleveland Children's Hospital. Said we should get him to speak at

> next year's convention. He may not have a lot of experience with

> RSS/SGA kids, but he is the world reknowned guy in gut dysmotility.

> And Dr. Fred said he is the funniest guy and a great speaker.

>

> Thoughts???? Would this be interesting to anyone???? Or a repeat

> of the Spigland/Harbison/Ursea presentation from last year.

>

>

>

>

> > Jen,

> >

> > I am really curious about this breath hydrogen test. It sounds

> very

> > similar to the testing for H. Pylori, very non invasive and easy.

> > Why does the GI feel is having more gas and bloating? Why

> > does he think it is related to a bacteria, and just not the

> delayed

> > gastric emptying. Very curious for selfish reasons. From what I

> > can find on the net, sounds like the symptoms for the gas

> producing

> > bacteria is the same as the H. Pylori which Matt has a history of.

> >

> > Also, on the net they talk about different breath hydrogen tests,

> > rice, lactose, etc. What kind are you doing?

> >

> > Beth