RE: Going off ATDs/Aldyth

[Guest guest]

Aldyth

I think the only thing you can do is go with your gut feeling. I always

intended to stop at 18 months to see if there was any change. I think

this was probably because I I've been told over and over that the

chances of being in remission are so slim, and I don't really believe

that I will be either.

I'm not bothered by the prospect of going a bit hyper because it's been

so easily brought under control before. Maybe because I was SO ill when

diagnosed (FT4 of 70, normal - 9 - 20) and had been ill for over a year

with it all put down to my mental health problems it doesn't seem a big

deal really. Could do with shifting a few pounds anyway lol.

But seriously I know that if I'm not happy before my appointment in ....

6 weeks now ... then I will have no qualms about presenting myself at my

GPs and requesting a blood test, and they'll back me up on it.

It has been scary trying to second guess my body and over analyzing

every little thing to see if it might be a symptom, but I think that

just makes it worse.

Just do what you think is best. Easier said than done, but you've got

plenty of time before you have to make an informed decision.

Take care

elsie

RE: Going off ATDs/Elsie

Oh Elsie, I do wish you all the very best that your next blood test

result is good and that you are in remission.

Thank you for your e-mail. I think it's bad that they have no specific

test here that can determine remission or not. I would be happy to stop

the Carbimazole if I were hypo, although my FT3 is right at the bottom

of the reference range it doesn't inspire confidence. The Endo said

some peoples FT3 just stays right down there at the bottom when they

come off the ATD's, some don't.

My gut feeling is to wait until I feel confident about coming off it,

then doing it as Pam suggests ie. very slowly. It's a hard decision to

make. (Still might brave the GP for the TRAb test though).

What made you decide to stop, anything specific, or just wanted to find

out if you still had active Graves?

Best wishes,

Aldyth