Re: To Jemima - TED

[Guest guest]

Hi Jemima,

Just one more thing I want to make.

I really, really encourage you to immedialely buy a

copy of " Graves Disease " , by Elaine . You

will find information in that book that is worth its

weight in gold for anyone who has eye problems

related to Graves.

You can get a copy many places. Since you live

in the UK, you can get it online via

www.amazon.com

or

www.barnesandnoble.com.

The amount of agony I have been through with

Graves eye disease since 2001 is more than

I care to put in words. I am doing better now,

however I still have an occasional day or two in

which I am not able to work and can hardly

function.

All the best to you & to your husband!

Best,

Ron

> Thank you so much for your mail . I looked at your pics, its

> heartbreaking you had to go through RAI so badly informed. My

> husbands eyes are very similar to yours and he hasn't had RAI.

We

> are told very little in the UK, I don't think the doctors here know

> too much about Graves. Everything we've learnt is from the

internet

> which is a sad fact. He isn't newly diagnosed, this is an

ongoing

> problem now for 8 years, this is a recent re-lapse. The

medication

> he is on makes his eyes photosensitive, the doctors dispute

this but

> we know it happens. I think he is best on medication but he is

very

> poor at looking after himself. He thinks I nag (which I do) but I

> try my best to support him and its very difficult. He just suffers

> rather than take pain killers to ease the pain. He won't have

eye

> drops because he dosen't like them..I force him now!..which is

> nagging..I've had to educate myself about this disease in order

to

> keep him healthy..I'm now on anti-depressants because it gets

so

> difficult. I joined this group to try and gain more information

and

> try and get some support in order for me to continue to suppot

him.

> No-body we know understands Graves and for this reason I

have no

> immediate help. Perhaps we should move to the US, there

seems more

> support there!!

> Look after yourself

>

> Jemima x