To -Eye disease

[Guest guest]

Thank you so much for your mail . I looked at your pics, its

heartbreaking you had to go through RAI so badly informed. My

husbands eyes are very similar to yours and he hasn't had RAI. We

are told very little in the UK, I don't think the doctors here know

too much about Graves. Everything we've learnt is from the internet

which is a sad fact. He isn't newly diagnosed, this is an ongoing

problem now for 8 years, this is a recent re-lapse. The medication

he is on makes his eyes photosensitive, the doctors dispute this but

we know it happens. I think he is best on medication but he is very

poor at looking after himself. He thinks I nag (which I do) but I

try my best to support him and its very difficult. He just suffers

rather than take pain killers to ease the pain. He won't have eye

drops because he dosen't like them..I force him now!..which is

nagging..I've had to educate myself about this disease in order to

keep him healthy..I'm now on anti-depressants because it gets so

difficult. I joined this group to try and gain more information and

try and get some support in order for me to continue to suppot him.

No-body we know understands Graves and for this reason I have no

immediate help. Perhaps we should move to the US, there seems more

support there!!

Look after yourself

Jemima x