My convention experience this year

[Guest guest]

This year was a little different for me. I wasn't always sure what to

do with myself, and I was very tired. It was a great break from life

here at home.

I enjoyed seeing so many old friends and making new ones! My husband

had the best time he has ever had at any convention. (due to Poker!)

For Storm and the rest of us the convention is our yearly trip to

normal. We are not different when we are with so many of you taking

the same journey with so many similar issues. Here at home we are

different. We don't know any other kids who take shots or meds every

day, or who have to be careful to eat snack often so the blood sugars

don't drop, or.... well you all know! So once again we took our trip

to normal and it was wonderful.

things I learned:

1>Andronarche is not the devil and will not stop my son from growing

suddenly we have time to catch it!!!

2>If growth velocity does not increase as it should, the gh should be

adjusted wether there is weight gain or not! (this one was personal

to Storm!)

3>If he does end up really short, it doesn't matter, because really

short people are awesome!!!!!

One of the best times I had was with Kim from land! We took her

to the grocery store in Patti's vehicle (thank you Patti!!!)

My kids never once asked her about having RSS or being short, they

asked if she had milk or eggs in land, and if they ate with

forks and spoons. (to which she said no, they use their hands! lol!)

Thank you so much Kim for entertaining my kids so! They loved their

time with you!

OH! One more thing I learned this year! Well a few all mixed up

together! Come a day early, bring a babysitter and leave later in the

day on Sunday!!!!! Bringing a babysitter is the biggest one!!!

Blessings to all,

Carmen, mom to Paisley 11 going on 20 and Storm 8y11m, RSS, 51

pounds, and 48 inches, prevacid, reglan, gh, flovent and albuterol as

needed!