Re: Just because I CAN -CHAT

[Guest guest]

Hi

As far as Hannah is concerned I am just trying to get anything down her that

I can-

I have been feeding her those yogurt tubes that are frozen-she thinks she is

eating popsicles. As far as Braxton is concerned... I think he is having

seizures because he is doing these really bizarre movements where his hands

and arms are curled inward and tight and is making sharp jerky movements where

his arms go straight out and then up and then towards his chest again. This

happens in the evening when he is really tired and especially when he has to be

still (like his car seat). And then he sits there for a short time with this

spacy look on his face. We are supposed to video tape them before we can get a

neurology consult. Who Knows?

[Guest guest]

<<We are supposed to video tape them before we can get a

neurology consult.>>

why do you have to video tape them before you can get the appointment?

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

[Guest guest]

hey alicia!!

i hope you find out soon what is going on with Braxton and i will

keep you in my thoughts and prayers!!

as far as hannah's eating make her a milk shake for dessert at night

before bedtime (this way she is sleeping and not using up all those

cal.) use 1 cup whole milk(150 cal), 4 tbsp of half/half(80cal),

hersheys syrup(chocolate or strawberry 2tbsp 100 cal), ice cream

(flavor her choice the one i used today was 170cal for 1/2cup so i

used 1 cup for 340cal. (hagendaz is the most at like 300cal per 1/2

cup)!!!), and then i added hot chocolate mix (was out of carnation

instant breakfast mix but still was 150cal and tasted no

different)!! this adds up to a 820cal shake!!!! i made him one

this morning for granted he only drank half of it but thats

410cal!!! just an idea for you!! i got your message on the phone

the other day too and will try you back next week, ok!!! take care!!

jodie c.

> Hi

> As far as Hannah is concerned I am just trying to get anything

down her that

> I can-

> I have been feeding her those yogurt tubes that are frozen-she

thinks she is

> eating popsicles. As far as Braxton is concerned... I think

he is having

> seizures because he is doing these really bizarre movements where

his hands

> and arms are curled inward and tight and is making sharp jerky

movements where

> his arms go straight out and then up and then towards his chest

again. This

> happens in the evening when he is really tired and especially when

he has to be

> still (like his car seat). And then he sits there for a short time

with this

> spacy look on his face. We are supposed to video tape them before

we can get a

> neurology consult. Who Knows?

>

>

>

[Guest guest]

They said I have to video tape them because they will not see us without a

docemented episode. Doesn't that sound stupid? Maybe they can't just go by

what people say? I don't know.. My camcorder is broken and I am trying to find

someone that will loan me one and have yet to have any success. UGH- How

frustrating!

[Guest guest]

I just told Liam's ped that I felt he was having seizures and they ordered

an EEG.. The EEG came up that he was having seizures so we got a consult

with the Nureo...See if your ped will order the EEG..

I have a yahoo group for toddlers with Epilepsy.. You are welcome to join it

and ask questions....

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

[Guest guest]

Another thing people have done, if you don't want to wait take him to the ER

the next time it happens. Even though it will be done by the time you get

there, they may do an EEG right away...

Mom to Liam (3 1/2 years old 34 3/4 " 27 lbs

SGA / possible RSS, Hypothyriod, Epilepsy.) Started GHT 5/18/04

and Jed (11 years old) Tourettes, CAPD,SVT.

SW Orlando FL

**Push for Bush 'cause Kerry is scary**

Check out my group:

http://health.groups.yahoo.com/group/ToddlerswEpilepsy/?yguid=174302728

[Guest guest]

an EEG was done on him about 5 months ago. He showed only very

occassional movements at that time that were similar. The doctor is going to

order

an EEG for us. That should come be coming up soon. I like the ER idea I will

remeber that.