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A Very Poignant Birthday

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Today my Olivia turns 5. This is more than just a birthday, it's

a huge milestone in our lives.

The day before Olivia was born via planned premature c-section at

29 weeks for failure to thrive the cardiologist had to run tests to

determine if I was to have a spinal or an epidural because of my

heart defect. He discovered a new problem in my heart, I'd

developed an aneurysm. When he said that it could be fixed I was

partially disinterested since I'd never had any major problems with

it and had my mind on the baby I was to deliver the next day

especially when the Dr's told us not to expect her to live. The

cardiologist sat and talked with us for a while and then gave me 5

years to live if I didn't get the defect fixed.

Well today is 5 years and I'm still here. When Olivia was 11

months old I had open heart surgery and they fixed everything giving

me a new lease on life.

Gods gifts are not always straight forward and sometimes you have

to search for them but I know there is a reason for everything. I

thank God for RSS. If Olivia was not failure to thrive we would

have sailed through life not knowing anything and I wouldn't be here

today. My children would be without a mother, my husband without a

wife. I'm no longer on borrowed time and every breath I take is a

gift that I must not forget, I've been given the future, to watch my

kids grow, to watch them achieve their lifes highs and lows, to just

be here.

It was horrible to watch Olivia struggle at birth and through her

first years, it's hard now with all of the medical issues and the

stares but on the other hand it's a small price to pay just to be

here. She will always be my hero for that.

I feel as though I've found a new family with everyone here and

I've gotten to be very close friends with some of you for which I'll

be forever grateful for. Never give up hope that things will get

better and remember that there is a reason for everything.

Love and hugs to you all

Leah, mom to 9 years and Olivia 5 years, 19lbs, 33 " , RSS, OI,

lots of meds

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