Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi Ina, RAI did not stop the roller coaster ride for me. I am over a year and a half post RAI and still not regulated on thyroid hormone replacement. The important thing here is that you understand this disease and the pros and cons of your treatment options. If you do that and feel that RAI is the right treatment for you, then that is an informed decision and yours to make. My thoughts are that since you are asking if it is the right thing to do, then you do not have all of the information you need to be comfortable with the choice. I would also advise you to remain on ATD's until you can make that decision without regrets. Three weeks is not enough time. Seeing your lab results with the normal ranges would be helpful. Your doctor should be monitoring you based on FreeT3, FreeT4 as well as TSH. TSH results alone doesn't cut it as the TSH can lag behind for months. I personally don't recommend RAI to anyone after what I have been thru with it. (You can see pictures of me and read my story at the link below.) But like I said, it is your life, your body, your choice. God bless, <A HREF= " http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://ho\ metown.aol.com/lisareynolds64/myhomepage/personal.html</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi Ina, first of all, Tapazole takes some time to start working, as your thyroid has to use up it's stored contents, so 3 weeks is not a fair trial. Why did you stop? I have to run off this AM, someone else will answer you no doubt, but so many questions come up--not the least, why are they going to do RAI when you're probably severely hyper? Your body will then slough off tons of hormone, possibly leading to thyroid storm! It needs, at least, to be controlled with ATD's first. We'd be a lot more able to help if you posted lab results (with reference range) here. Personally, I hope you don't jump into RAI without thoroughly educating yourself, but I know we all have to do what we have to do-- Terry > > Reply-To: graves_support > Date: Sat, 24 May 2003 15:49:16 -0000 > To: graves_support > Subject: rai set for Tues > > I have been in bed weak for over a month, my symptoms started in Jan > when I couldnt get out of bed, I have practically all the symptoms > and I feel like I am going crazy, want to cry all the time, and feel > suicidal. I want this OVER!!! > > Both my aunts, mom and nephew have had graves and all had RAI and are > on synthroid now and living normal lives. My life has been a > rollercoaster of depression, fatigue and wanting to hide in my house > for 5 years now. > > I don't know my lab results, but have a highly recommended endo and > trust this is the best way to get back to some semblence of normal. > > I have been scared to death reading all the posts and know if there > is someone who this rai can go wrong it will be me. I was on > tapazole for 3 weeks with NO change. > > Am I doing the right thing? > > Ina > > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 > Both my aunts, mom and nephew have had graves and all had RAI and > are > on synthroid now and living normal lives. Like many members, I had very active Graves and might be able to understand how miserable you feel. Something that I think is very important to point out is this: Older relatives of yours who had RAI probably had it administered differently than you would: #1 Their doctors put them on either ATDs or a regimen of iodine drops to bring their levels into the normal range to decrease the risk of thyroid storm. #2 They may have had a smaller dose of RAI than is administered now, which would make their eventual hypothyroidism happen more gently and be easier to regulate. If your nephew had it recently do remember that he won't have to cope with all the possible issues that women often do after having RAI. No one should have RAI when they're at their most miserable. Besides being dangerous that's also not the time to make such a dramatic decision. Take care and I wish you all the resources you need to make the best decision and deal with it, Fay (in remission for going on 2 years after 14 months of Tapazole) ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
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