Re: question re: kidney and/or intestinal abnormalities

[Guest guest]

My son (1 yr old) has " horseshoe shaped " kidneys...which is

considered an anomaly...but I guess they're not really that

unusual...or so I've been told. The doctors said it will not effect

the way they function (whew). I had wondered if other RSS kids had

kidney abnormalities, but I never hear (or see rather!) anyone talk

about it.

I also wonder if any other RSS children have been diagnosed with

anomalies in their intestinal tract? The position of

's " ligament of treitz " is in the right upper quadrant, and it

should be to the left of midline in the left upper quadrant.

He also has a " malrotation anomaly of the proximal small intestine " .

Which eseentially means it's somewhat twisted. I am still waiting

for word from the Chief pediatric surgeon at Children's hospital in

Oakland to find out whether or not they want to operate to fix it.

It obviously can cause problems down the line if it twists enough to

prevent proper digestion.

My gastroenterologist did not know if this anamoly was common with

RSS, he could not find any data to support it, so I was hoping to

find out from some of you...?

turned one year old on 7/3 and he seems to be doing well. He

weighs 11 lbs 3 oz and he's 26 inches long.

Take care,

( 5 and 1 - RSS)