Introduction from new member (mom)

[Guest guest]

Hi I am , mother the Skylee, my RSS child. She just turned

three. Almost 22 pounds and 33 inches tall. We suspected RSS from

the time she was 12 months when I started taking her to the Mayo

Clinic in Rochester, MN seeing Dr. Lteif. Finally two years later

when we were referred to a geneticist we got the diagnosis of RSS.

We knew there was a problem when I was 32 weeks pregnant and an

ultrasound indicated she was very small. At 38 weeks labor was

induced and Skye finally came out via cesarian weighing 4 lbs 11oz.

We were surprised because ultrasounds indicated she would be 6 1/2

pounds. (the asymmetry and the large head probably threw off the

weight estimate). She was very healthy and strong as any baby.

Now my spunky little girl will be starting preschool (that I work at)

next month. I have so many concerns, but since I will be there with

her I think she will get a lot out of it. The simplest things are

making me worry like will she eat anything there, how will she get up

to the toilet or to wash her hands, ect.

TEETH are becoming a problem. The crowding and she already has

cavities. Anyone have any good links I could print off for her

dentist?

Just looking around the internet I have seen pictures of other RSS

kids that have a striking resemblance to my daughter. The big eyes,

small chin, big ears. It has made me very emotional. I am so happy

my child will be able to find other people just like her to

communicate with as she grows. Sure it is 'so darn cute' she is so

petite and tiny now, but she has so much ahead of her to deal with.

Oh and the growth hormone. My husband and I had ruled that out, now

reading your messages here I see it has been helpful for some of your

children. I need to find more information on that.

Thank you for letting me into your elite cliche. I am eager to get

to know and learn from all of you.