Re: Neclear Scan - Back to Alegra

[Guest guest]

Hi Barb,

What do your TSI's look like?

My TSI is at 97% 2 months ago it was 105%

How long ago were you diagnosed, and what do you take

for your Graves'?

I was diagnosed about 1 1/2 years ago and I take 50mgs of PTU right

now.

Alegra

[Guest guest]

Hi Barb,

Your welcome.

No I did not have a baseline prior to ATD's because as I said,

before my Endo didn't tell me about it. I had the RAU-I uptake

scan and they said, that confirmed graves disease. It wasn't until

after a year or so I found out about the TSI test.

I wouldn't say its necessary to get it every month or even every 3

months. If I couldn't afford it I would do it once every 6 months

or 1 time per year. Only because I think that its highly unlikely

that I'm going to go below 2% anytime soon. It only went down like

8 points yes thats something but still I have a long way to go.

I am hopeful though that I will someday go into a remission I have

come to far to go backwards. The reason my Endo did the TSI test

again is because she wants to run it every 3 months now just to see

where I'm at but I may tell her I don't really need that test but

once every 6 months. Its very expensive its like $395.00. I can't

see charging my insurance that outrageous amount when its not

likely to change that much in 6 months time.

There is always lots of hope if you still have your thyroid and you

haven't done RAI there is TONS of hope.

I wouldn't put to much stock in the TSI right off the bat. It was

only after a year that I was on PTU that I actually got my first TSI

test done. This is one test I feel doesn't have to be run but twice a

year every 3 months is overkill (just my personal opinion from

experience)

So when you can afford it I would do it once then again in 6 months

then maybe 2 times a year there are some people who like to get it

done every 3 months but from my results I don't see the scense in it

really it didn't move much and for the cost I am going to tell my

doctor that I would appreciate waiting another 6 months before she

does that one again. I would focus on your FT4 and your FT3 and your

TSH right now and get those levels in the normal range for you.

Alegra

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