Re: Possible kidney problem

[Guest guest]

My daughter, , also has had one urinalysis done and another one coming up

in 2 weeks. As I write this to you I am reading the urinalysis report from

before and it states " the excretions of c6-c10 dicarboxylic acids were slightly

elevated, with a pattern not indicative of a dietary source " ??? Anyway, this is

why we are repeating it.

I know that the geneticist we saw wanted her to have an ultrasound done on her

kidneys because she believed there was a link to kidney problems and RSS;

however I have now come to learn that this is old information. Needless to say

we did the ultrasound prior to knowing this and all was fine. Good Luck, Jane

mom to SGA ?RSS 12 months 13#14oz 26 " , Gavin 4, Aidan 2 both nonRSS

[Guest guest]

Thanks. I don't have a copy of the report but I wouldn't understand

the 'doctor' terms either. I just know what the doctor

said.....we'll see, hopefully we'll know something tomorrow night or

monday. Good luck to you too.

>

> My daughter, , also has had one urinalysis done and another

one coming up in 2 weeks. As I write this to you I am reading the

urinalysis report from before and it states " the excretions of c6-c10

dicarboxylic acids were slightly elevated, with a pattern not

indicative of a dietary source " ??? Anyway, this is why we are

repeating it.

> I know that the geneticist we saw wanted her to have an

ultrasound done on her kidneys because she believed there was a link

to kidney problems and RSS; however I have now come to learn that

this is old information. Needless to say we did the ultrasound prior

to knowing this and all was fine. Good Luck, Jane mom to SGA ?

RSS 12 months 13#14oz 26 " , Gavin 4, Aidan 2 both nonRSS

[Guest guest]

Hi ,

I was wondering how did all of this come up? who is 4 3/4 at

26 months had a urinary tract infection and they did a VCUG and

ultrasound. The VCUG is where they put a catheter and shoot dye into

it and then have her under constant x-ray to watch and see if it backs

up into the kidneys and then they take it out and make sure that there

is no problem with the flow back out. Thankfully everything was fine.

They did this because she had the urinary tract infection at a young

age. And then about three/four months ago she had another urinary

tract infection.

I was just wondering how did all this come about - having to do the

urinalysis and stuff?

Thanks

4 3/4 RSS and Kelli 2 NON RSS

> HI

> My daughter is a possible RSS and she has had 2 urinalysis's and is

> going for number 3 tomorrow. They are concerned of her ability to

> concentrate urine and are also concerned of the amount of blood

> cells, I think white, that are present. Has anyone else gone through

> this or have any information that would help? Her doc said he's not

> sure if something is wrong but they think there is a possibility of a

> kidney problem. I feel pretty lost and worried.

>

> Thanks

>

> Mom of 3

> 1 possible RSS

[Guest guest]

Hi ,

My daughter is almost 8 months old now. At her 6 month check up her

pediatrician ordered basic bloodwork and a urinalysis to check for

any problems for failure to thrive...she was 11 1/2 pounds.

Everything appeared fine but there was a slight concern with the

urine...too much something..I think blood cells, for the amount of

urine. Her ped didn't order any thing else and sent us to a

genetisist. He wanted to repeat it just to make sure everything is

OK because she is not really gaining and he suspects RSS. The repeat

left more concern, especially about the kidneys being able to

concentrate urine. We just came home from a repeat urinalysis (and

more bloodwork...suspected low growth hormone or malnutrition from a

previous one) She has not tested positive for any urinary tract

infections. These are just basic urinalysis, no dye or anything.

Hopefully I'll know those results tonight.

> > HI

> > My daughter is a possible RSS and she has had 2 urinalysis's and

is

> > going for number 3 tomorrow. They are concerned of her ability

to

> > concentrate urine and are also concerned of the amount of blood

> > cells, I think white, that are present. Has anyone else gone

through

> > this or have any information that would help? Her doc said he's

not

> > sure if something is wrong but they think there is a possibility

of a

> > kidney problem. I feel pretty lost and worried.

> >

> > Thanks

> >

> > Mom of 3

> > 1 possible RSS

[Guest guest]

Oh ,

I hope everything works out well. Don't you just hate seeing them go

through testing? It's horrible. They hate it and I can't blame them.

Please keep us posted on your results.

> > > HI

> > > My daughter is a possible RSS and she has had 2 urinalysis's and

> is

> > > going for number 3 tomorrow. They are concerned of her ability

> to

> > > concentrate urine and are also concerned of the amount of blood

> > > cells, I think white, that are present. Has anyone else gone

> through

> > > this or have any information that would help? Her doc said he's

> not

> > > sure if something is wrong but they think there is a possibility

> of a

> > > kidney problem. I feel pretty lost and worried.

> > >

> > > Thanks

> > >

> > > Mom of 3

> > > 1 possible RSS

[Guest guest]

I got the results from the urinalysis. Our geneticists assistant

called me because the doc was gone for the day. The results were

same as the previous 2 even though this one was done

after 'stressing' her kidney's by no feeding for 7 hours overnight

(that is a long time for her). The assistant wouldn't tell me

anything else but she said the doc would call me monday and possibly

refer me out to necessary doctors. Now of course, I can only imagine

the worst, and I have all weekend long to do it. All I know is the

doc said that there could be problems of fluids and everything going

through too quickly if the kidneys are not working right and that can

contribute to her problem gaining weight. He did say it doesn't

necessarily mean there is something wrong, but all I know is #3 still

isn't looking any better and it's concerning them.

> > > > HI

> > > > My daughter is a possible RSS and she has had 2 urinalysis's

and

> > is

> > > > going for number 3 tomorrow. They are concerned of her

ability

> > to

> > > > concentrate urine and are also concerned of the amount of

blood

> > > > cells, I think white, that are present. Has anyone else gone

> > through

> > > > this or have any information that would help? Her doc said

he's

> > not

> > > > sure if something is wrong but they think there is a

possibility

> > of a

> > > > kidney problem. I feel pretty lost and worried.

> > > >

> > > > Thanks

> > > >

> > > > Mom of 3

> > > > 1 possible RSS

[Guest guest]

Just a note - thinking of you and your worries. I do the same thing: think

about all the worst case scenerios - I don't know what would be better - let me

know partial results or just call me when you for certain what is going on.

Hope you get through the weekend o.k. Sending my support,

Jane, mom to - SGA ?RSS

[Guest guest]

Just a note - thinking of you and your worries. I do the same thing: think

about all the worst case scenerios - I don't know what would be better - let me

know partial results or just call me when you for certain what is going on.

Hope you get through the weekend o.k. Sending my support,

Jane, mom to - SGA ?RSS