Re: Hi I'm feeling better - To Luci

[Guest guest]

Hi Barb,

I cant believe that indos dont understand this the way all you

girls here seem to. I mean we're only lay people with very minimal

medical backgrounds if any , and we're figuring this stuff out more

and more every day. Grrrr I guess you really do have to walk a mile

in someones shoes to know exactly how they feel. I think it's

pathetic and sad, that they (endo's)dont have any clue. (not all I

know, but alot of them) I cant say I know what each and every pt I

have is feeling, but I do believe thier concerns are legit and

valid, and they need at least some sort of reassurance that I

believe them.Okkkk I feel a tangint and I know we all feel pretty

much similar thoughts LOLOL,so I'll quit while I'm ahead.

My dosing... OK I take 1/2 a tablet in the am, then a 1/2 tablet

in the afternnon and a whole tablet before bed. I just have such a

hard tme splitting that 2nd tablet into 3 and it was making me too

upset trying that I just take the whole one at night. That is my

100mg. What I tryed to do was only take 1/2 tablet at night also. So

if my math is correct, I was lowerng my dose by only 25mg. Now.... I

cant remember if I got sick before of after lowering my dose. I do

know that a few days into my sore throat ( I keep bringing that up

dont I????sorry it's just pure evil torchure for me.) Ok sooo then I

was sick at the same time I started to feel sweety/hot/jittery/ out

of breath then......I started academy again/then I started getting

weepy thenI said the heck with this I need to up my dose to the

orrigan way I was taking it. Now is it coincident I feel better or

my levels? The truth is I didnt get labs during all of this. I realy

cant miss timeoff from work right now, and it was my last weekend to

rest and the weather has been so horrendouse and I really really

couldnt leave the house. I probably would have driven myself into a

ditch. I really needed 2 days to calm down. Soooo back to square 1

again I think unless I try and lower the dose now that I'm not sick

and I " mm feeling pretty good emotionally. Physically my fingers are

swollen on my hand, and my back and hips are killing me but I think

all this rain is just getting to me . I dont know, I guess I need

advice from the graves gurus!! Any one with any suggestions are

welcome. So Barb, that's my story and I guess you've been there too.

I am glad you took the time here, it realy makes a difference to

someone who needs that little bit of " someone does her me " . So

thanks Barb and Aydth!!

Luci

>

> Hi Luci - Your post reminds me of a couple of mine

> lately. I was heading into hypoT and wanted to

> decrease my Tap, and my Endo just wouldn't hear of it.

> In fact, he said my levels were " beautiful " and there

> was no way that any symptoms I was having would have

> anything to do with my thyroid. Gggrrrrr!!

>

> I just wanted to be sure I was understanding how you

> were trying to decrease your meds - was it 1/2 tablet

> total over the course of the day, or 1/2 tablet at

> each dose? Or maybe just 1/2 tablet at one dose? I'm

> just wondering why you felt the change in symptoms so

> strongly.

>

> I sure do hope someone who is more familiar with

> decreasing meds will respond to this - I'm new to this

> and was just told yesterday by my regular doctor that

> it's okay to reduce my dose by half. That sounds like

> too large a jump at one time to me, so I am going

> somewhat more gradually, and I'm not even certain I am

> going gradually enough. In fact, I'm probably not.

>

> Barb

>

>

[Guest guest]

Hi Luci -

I'm glad you're feeling a bit better! Getting your labs done when you get a

chance should give you a better idea of what's going on.

It sounds like you've got a couple new things going on, and maybe the

" stress " of that is contributing to how you feel. I have come to recognize

now after I've been diagnosed with Graves', that things out of my usual

routine can make me feel hyper, even if I'm not. It's stupid really, even

just little things can make me jittery and make my heart feel like it's

racing, even though sometimes it isn't. It could be something simple like

having to return a phone call I'm dreading, or going to a new doctor for the

first time, getting ready to go on vacation even! Especially if it's

something I have to be on time for...I feel rushed and then I start feeling

hyper symptoms. It's all just stress, no matter how small, and that seems to

make me feel like I have hyper symptoms - anything from shaky hands to

pounding heart, etc. The good thing is that now that I _know_ this is what's

happening, I have been able to control it somewhat. Most cases I know I am

not hyper, so there is no reason I should be feeling hyper symptoms, and

that it's just anxiety or stress. So if I know that's the case, I can

usually calm myself down by breathing deeper or slower and just recognizing

consciously that it's just stress that's causing these feelings. Usually

that's enough to make it stop or at least abate. So I think it's possible

that some of what you're feeling could just be from the new stress of

getting up early, driving, etc. I wonder do others feel similarly during

stressful moments? Or are we just weird?

It also sounds like you are still hypo for you. I get the swollen fingers

and hip pain when I'm hypo for me, too. Hopefully some new labs will shed

some light on this. Hope you keep feeling better!

Re: Hi I'm feeling better - To Luci

> Hi Barb,

> I cant believe that indos dont understand this the way all you

> girls here seem to. I mean we're only lay people with very minimal

> medical backgrounds if any , and we're figuring this stuff out more

> and more every day. Grrrr I guess you really do have to walk a mile

> in someones shoes to know exactly how they feel. I think it's

> pathetic and sad, that they (endo's)dont have any clue. (not all I

> know, but alot of them) I cant say I know what each and every pt I

> have is feeling, but I do believe thier concerns are legit and

> valid, and they need at least some sort of reassurance that I

> believe them.Okkkk I feel a tangint and I know we all feel pretty

> much similar thoughts LOLOL,so I'll quit while I'm ahead.

> My dosing... OK I take 1/2 a tablet in the am, then a 1/2 tablet

> in the afternnon and a whole tablet before bed. I just have such a

> hard tme splitting that 2nd tablet into 3 and it was making me too

> upset trying that I just take the whole one at night. That is my

> 100mg. What I tryed to do was only take 1/2 tablet at night also. So

> if my math is correct, I was lowerng my dose by only 25mg. Now.... I

> cant remember if I got sick before of after lowering my dose. I do

> know that a few days into my sore throat ( I keep bringing that up

> dont I????sorry it's just pure evil torchure for me.) Ok sooo then I

> was sick at the same time I started to feel sweety/hot/jittery/ out

> of breath then......I started academy again/then I started getting

> weepy thenI said the heck with this I need to up my dose to the

> orrigan way I was taking it. Now is it coincident I feel better or

> my levels? The truth is I didnt get labs during all of this. I realy

> cant miss timeoff from work right now, and it was my last weekend to

> rest and the weather has been so horrendouse and I really really

> couldnt leave the house. I probably would have driven myself into a

> ditch. I really needed 2 days to calm down. Soooo back to square 1

> again I think unless I try and lower the dose now that I'm not sick

> and I " mm feeling pretty good emotionally. Physically my fingers are

> swollen on my hand, and my back and hips are killing me but I think

> all this rain is just getting to me . I dont know, I guess I need

> advice from the graves gurus!! Any one with any suggestions are

> welcome. So Barb, that's my story and I guess you've been there too.

> I am glad you took the time here, it realy makes a difference to

> someone who needs that little bit of " someone does her me " . So

> thanks Barb and Aydth!!

> Luci

>

>

>

> >

> > Hi Luci - Your post reminds me of a couple of mine

> > lately. I was heading into hypoT and wanted to

> > decrease my Tap, and my Endo just wouldn't hear of it.

> > In fact, he said my levels were " beautiful " and there

> > was no way that any symptoms I was having would have

> > anything to do with my thyroid. Gggrrrrr!!

> >

> > I just wanted to be sure I was understanding how you

> > were trying to decrease your meds - was it 1/2 tablet

> > total over the course of the day, or 1/2 tablet at

> > each dose? Or maybe just 1/2 tablet at one dose? I'm

> > just wondering why you felt the change in symptoms so

> > strongly.

> >

> > I sure do hope someone who is more familiar with

> > decreasing meds will respond to this - I'm new to this

> > and was just told yesterday by my regular doctor that

> > it's okay to reduce my dose by half. That sounds like

> > too large a jump at one time to me, so I am going

> > somewhat more gradually, and I'm not even certain I am

> > going gradually enough. In fact, I'm probably not.

> >

> > Barb

> >

> >

>

>

>

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