RSS baby for adoption.

[Guest guest]

Hi ,

I read about this baby a week or so ago and actually sent an email

last night to the agency who has her up for adoption! I couldn't

stand to think that a little RSS girl may be out there and not be

wanted because of her syndrome. I have 2 biological children, a boy

and a girl. My daughter aged 2 has RSS - and has a more severe form

of it. But she is beyond precious. I wouldn't mind at all adopting a

child with the syndrome.

I see you have 2 adopted Korean children already. You must certainly

be very qualified to adopt another one! I want this child to go to a

warm loving home where she can reach her maximum potential. My

husband and I are very willing to adopt her but have no idea what

that entails. You do and are probably in a better position than us

to make it happen quickly.

I can tell you that all the RSS kids I know enrich their families

lives. They are often bright unless they have not had " enough " food

in their bodies to maintain normal blood sugars over a period of

time. A low chronic blood sugar can lead to learning and

developmental issues. They are frequently uninterested in food so

getting nutrition into them is our biggest challenge as parents

especially pre school age. They often have gastrointestinal issues

eg reflux and delayed gastric emptying. They are prone to ear

infections because of the triangular shape of their faces. Most have

some form of assymmetry in their bodies eg one leg shorter than the

other. And most have very low muscle tone so they are often

physically delayed but eventually catch up. Most have a " look " to

them. Large forehead, dainty, triangular shaped face, very petite

and short bodies. Most have shortened incurved little fingers. Some

would say they look like little pixies or cute little aliens!!

My daughter Jillian is very bright but doesn't walk or talk but

can " sing " a bunch of songs with appropriate hand movements. She

spent most of her first year in and out of the ICU as her reflux was

so bad that she aspirated what she was refluxing and got multiple

pneumonias. Her lungs are somewhat damaged because of it and she

requires oxygen to sleep and when she is sick. This is very rare.

Most have no lung problems. Jillie is fed via a feeding tube

surgically placed into her stomach and had a surgery to stop reflux

and vomiting. She is very physically delayed (and speech/oral motor)

as she is very weak with very low muscle tone but she is normal

socially, cognitively and for fine motor skills. She is on the

severe end of the spectrum.

RSS kids vary tremendously in their needs. Special time and

attention to feeding issues and enrollment in EIP are the norm for

these kids. There are treatments that can make these kids attain

normal height but I'll save that lesson for another day.

I hope not to have scared you. These kids if in a good family

environment with good medical resources available to them can grow

to be normal adults. This is what I want for this child. If you are

up for the challenge I wish you all the best. I will still talk with

the agency just in case!

Email or call () me if you want to know anything else!

Best wishes,

>

> Hi everyone! I am new here. My name is and my husband and

I

> are hoping to adopt a little girl who has RSS. She is 11 months

old

> and is in Korea. We have two biological children and two Korean

> born children now. We saw her on our agency's website and just

> melted.

>

> I have done a lot of research on RSS but is there any one thing

you

> all think we should know?

>

> Please feel free to email me J21inca@a...

>

> Thank you so much!