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Re: week 5-not going well

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I have often wondered about food changes.

When going GFCF do you " substitute " new " replacement " foods, or just do

without?

Consider milk. It's about 6g or Protein to 10g carbo [from memory, or close]

if you substitute rice milk, I wold guess you are getting about 25 carbo's

and 1 g protein. I don't have labels.

But consider the effect on the child. More carbo's more sugar [simplecarbos]

and much less to no protein. This sure would affect my child.

just an idea that popped intomy head.

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We thought we were cfgf for about a month when we discovered '

breakfast cereal contained oats. Gluten is an insidious substance that can

be hidden in foods that you might never suspect. I would recommend

reviewing his diet to check for hidden sources of gluten and also remember

that it can take months for the residual gluten to finally come out of his

system.

Pat in Ohio

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At 01:32 pm 7/1/01 -0700, you wrote:

>Not 100 % sure but it still could be withdrawel from gluten-which can

>takes months, and seems to clear in stages- we hit a period right around

>three months gfcf where my son was much worse for a week or so and then-it

>all just came together and he hasbeen improving steadily ever since. Hang

>in there this could just be a srorm before the calm.

Has anyone seen things getting worse after six months, without a known

infraction? My son has been quite off for the last several days and we

don't know why.

Marty

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At 04:59 pm 7/1/01 -0700, you wrote:

>Yes- Yes- yes, For us it hit at 3 months- but I have read alot of posts

>about the six month mark too.

Thanks, and to the other poster as well. I'm hopeful. It really seems like

is almost drunk. He repeats himself, acts silly. Yet all the progress

he's made is very evident; he hasn't lost that. His language is good, talks

in sentences, asks for what he wants, converses.

But he's more shy than usual and more playful. Almost like a kid being a

kid, in a real silly mood that's lasting several days. If it is caused by

an infraction then it's coming out different than it used to. Oh, if this

is a sign that things are going to get better still I can't wait to see

what's next. :)

Marty

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My child's behavior was very erratic during the first 2 weeks gfcf -

some wonderful moments of clarity, then sudden swings to hyper &

angry & griefstricken. Things smoothed out, but at about week 4, I

wondered if I'd imagined the positive changes b/c he deteriorated

again. That passed over 7 to 10 days. I theorize that he was going

thru 2 different withdrawal periods - as gluten is believed to be

slower to leave the system. And during that second period, he would

wake up crying & demanding bread.

Also, there were some additional erratic episodes as I discovered &

removed hidden gluten (shampoo, paste, cereal packaged on

contaminated lines, etc.)

Your experience sounds like a normal & positive reaction to the diet

to me.

N

> Hi all. I have some questions or maybe I just need some support.

> We've been on the diet for 5 weeks, 's (4.5 w/Autism) behavior

> has been so erratic that I've had a hard time telling if this is

> withdrawal or he's just not responding to the diet.

> Overall, I have to say that his behavior is worse than it was

before

> the diet, with brief periods where he is alert and his language

seems

> better....

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.....It really seems like is almost drunk. He repeats himself,

acts silly....

That's how my son reacts to a casein accident.

If he eats something with a lot of articial colors, flavors, etc., he

also repeats and acts silly, but is also super-hyper and doesn't have

the drunk or stoned aspect.

N

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up to a year. F

Re: week 5-not going well

> HI

>

> I keep hearing it can take months to get gluten out of the system. Anyone

> have

> any idea how many months?

>

> Margaret

>

>

>

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