Re: 's Initial Blood Test

[Guest guest]

Hi,

Most RSS children show normal amounts of growth hormone. Dr H does

not require a stim test in order to start GHT.

Judith, Steve, (RSS) and (non RSS) 4 1/2 year old twins

[Guest guest]

B. -

Virtually every study published on RSS or SGA children in the last 3

years clearly states that a stim test is NOT indicated for an RSS or

SGA child, unless there is reason to believe that there may be

growth hormone deficiency (child's height falls off severely even

further away after about 6 months and the weight does not fall off

as much -- our kids it is usually the opposite, weight falls off

more....)

I would question your doctor as to why he or she thinks that a stim

test is required. The MAGIC library has copies of all the latest

studies that have been published on RSS/SGA kids and growth

hormone. Get copies of them (free for members) and bring them to

the doctor. Act interested in why he thinks a stim test is needed

and then show him the articles....

If your child is born SGA, and fails to achieve catchup growth by

age 2, a stim test is NOT automatically indicated to have GHT

prescribed. Your insurance company may require it, but Dr. H

herself usually gets around even that requirement (shows them all

the studies). Maybe your doctor sees something else that makes him

or her believe GHD may be there....

S.

> Hello Everyone:

>

> Well last week I finally had 's initial blood work done which

> was ordered by her endo. I couldn't get the results from the endo

> because he is away for two weeks and no one else in the office can

> give me the results. Well the ped's office tried calling them and

> they got the same run around. End result I called the lab and they

> faxed a form to the ped's office who filled it out and sent it back

> and they had her results very quickly. I just received a call to

tell

> me that her results were " signed off as normal. "

>

> From what I think I understand most RSS kids have a false negative

for

> growth hormone deficiency correct? So does this mean the next

route

> is a stimulated test? When does that have to be done? I still

don't

> have an appointment with Dr. H and the endo who prescribed the test

> saw in February and said to get the blood work done before

> coming back in October (which is now a December visit). Do I wait

> until my visit with Dr. H or the next visit with the endo or do I

need

> the stimulated test done prior to seeing either of these doctors?

>

> I don't know what I should or need to do here so I'm asking for any

> guidance.

>

> Thanks

>

> RSS 4 1/2 - 29lbs and just about 37 inches and Kelli 2 non

RSS