Re: Additional Hypoglycemia Question

[Guest guest]

Hi again ,

You would just have to bring her sugars back up by feeding her,

carb/protien combos are the best thing, refined sugars are not very

good for this (including juices), Pedialite helps too. Since their

bodies are so small they sometimes can't store enough sugars to

sustain a long fasting period so they run out. If 's sick and

spilling ketones in the high range and cannot eat due to high fever,

vomiting, refusal to eat when sick, then your best choice might be

to take her to the hospital for a D-5 or D-10 IV drip. This is a 5%

or 10% dextrose drip that will help replace sugars until she is

eating again.

Our Dr told us that the difference between feeding and an IV for

bringing sugars up is only 1/2 an hour so we can usually convince

Olivia to eat and drink a little something since she hates IV's.

She's not terrified just scared of the poke since she gets them

every 3 months for treatment for her bones (non RSS related).

As for her diet, I'm not too sure there, every child is

different. We try to cut out as much refined sugar as we can and

let her eat/snack very often, about every hour or whenever she

want's to eat.

Remember that I'm not a Dr and this is just what works for us, go

ahead and check with your Ped. to see what they like to do in these

situations.

Leah, mom to and Olivia

> First, thank you for the responses but now of course one question

and

> answer leads to another. What do I do exactly if I were to do the

> urine strips and find that ketones are spilling into the urine?

Tell

> the ped? and in the interim what do I do with her diet and such?

>

> Like I said I was confused!! Any answers will be very helpful.

>

> B.

> 4 1/2 RSS 29lbs and just about 37 inches and Kelli 2 nonRSS

[Guest guest]

Hi ,

I am an RSS adult who is still dealing with the hypoglycemia issue.

It's important that your daughter's diet consist of as many complex

carbohydrates and proteins as possible (as opposed to simple

carbs.). I don't eat any white bread or pasta (I love the South

Beach diet craze b/c it means that whole wheat pasta is a lot easier

to find than it used to be ). If I do break down and eat a serving

of something that's considered a simple carb (anything with white

flour and/or sugar) or a starch, I always make sure that I have

protein with it. It's also important that your daughter eat often.

I ate every two hours as a kid, and now as an adult, I try to eat

every three to four hours.

~Hillary

22, RSS

[Guest guest]

,

If spills ketones, then you need to try to get her to eat or

drink. Pedialyte does not have enough sugar in it to get rid of the

ketones, but Gatorade does. Drinking is very important as our kids

will get sicker from dehydration that goes along with the spilling

of ketones.

If that does not work, or she does not take any liquids, then the

standard course of treatment is to have her go to MMH's ER and be

rehydrated with D10 - NOT D5 as the residents may try to do. We

have had lots of experience with this over there and I know what

they try to do. The nurses really understand better because they

have seen Max so many times, but even then you can get a nurse who

has not met Max and does not know the procedure.

If is vomiting, then you should call Dr. Rosh and let him

take the action that is necessary. I don't know if Dr. Cohen, et

al, knows the routine or if he would give you a hard time with it.

Dr. Rosh and Dr. Yuseff are really familiar with the protocol.

The other thing you can do is CALL ME!!!!! I don't mind a call even

if it is in the middle of the night. I can advise you and guide you

in the right direction. You should also request from MAGIC the

piece that I believe Dr. H. put in their library with the guidelines

for this situation.

By the way, I spoke to Yadira this morning to schedule Max's Sept.

appointment and she told me that you were on her list of people to

call when Dr. H. is taking new patients. She told me to tell you

that she will NOT forget you and not to worry. She will call you

as soon as she can schedule .

Jodi Z.

[Guest guest]

B. -

Please contact MAGIC and make sure that you get the base documents

written by Dr. Harbison

Library ID #H-28 " Explanation of Ketones and Link to Hypoglycemia "

H-26 " Use of Cornstarch to prevent nocturnal hypoglycemia "

and

H-43 " Letter to RSS/SGA Parents of Infants " (but really it is for

any parent of a younger child

All of these are written by Dr. Harbison, and are very explanatory,

and can be given to a local dr. as well.

> First, thank you for the responses but now of course one question

and

> answer leads to another. What do I do exactly if I were to do the

> urine strips and find that ketones are spilling into the urine?

Tell

> the ped? and in the interim what do I do with her diet and such?

>

> Like I said I was confused!! Any answers will be very helpful.

>

> B.

> 4 1/2 RSS 29lbs and just about 37 inches and Kelli 2 nonRSS