Convention

[Guest guest]

Hi Debby and all,

Sorry I missed the convention. Sounds like it was a lot of fun again.

Maybe next year.

Debby, if you get a refrig that is too cold, do what I do. Put the

growth hormone inside a bottle of Scotch. Then to get it out you have

to drink all the Scotch. If you accidentally drink the growth hormone

then you get a headache that just keeps growing.

What did Dr. H talk about this year?

Ken M

> Well we made it back yesterday afternoon. Did the return drive in

one shot (a little over 9 hours).

> Colette and Adam had an awesome time, as we did before.

>

> I am feeling a little sad that so many people were there that I

didn't get a chance to connect with. I didn't want to leave the kids

to go hang out at the bar (were you guys there?) and some people had

to literally jump out at me for me to meet them (like Katy! thanks).

I wanted to spend some time with J., but never did find you!

Otherwise it was quick chats with many while waiting for Dr. H. or

Dr. . I also wanted to meet Jodie R.......sorry Jodie, we

probably passed each other, but never read the name tags closely

enough!

> I did meet, I think, all the Canadian contingent. We were well

represented this year! After realizing how hard everyone else is

finding it to get GHT up here, I am more than thankful for my

experiences here in Toronto.

> I am glad to be finished with using your " funny " money. I was

getting a head ache examining the bills to make sure I gave a one

instead of a 20!!! Our coloured money is so much easier LOL.

> My mother enjoyed herself as well. The weather was great, I thought

it might rain for the pool party but it managed to hold out.

> I feel like I have been on a roller coaster and am still waiting

for the world to stop spinning but we are getting there.

>

> My new quest now, according to Dr. H. is to get more GHT into Adam.

It seems Canadian standards of GHT allowance are alot less than in

the US. He was 3 standard deviations away for height and weight

before starting GHT 3 years ago and now he is 2 standard deviations

but Dr. H. was still flipping over the low dosage. So I have to start

shaking the trees for more GHT now. That appt. is in Sept.

(thankfully it's soon).

>

> I'd like to express my utter thanks to all of Magic and the

volunteers. What an incredible extravaganza to stage and it was done

with what looked like very little effort. Everything was awesome (of

course our fridge was soooooooo cold in the hotel room I lost 1/4

bottle of GHT......frozen solid!! The new, second bottle was on it's

way to freezing when I discovered it!!).

>

> Debby

>

>

>

[Guest guest]

Believe it or not, we just got back from Chicago late last night! We stayed a

few extra days

for vacation, which were quite fun! It took me awhile to read everyone's post,

and I have

to ditto what everyone said about the convention - it was a great experience

(and this was

my second time). I definitely recommend going to this at least once if you have

a child

with RSS. I enjoyed meeting many of you, and it is late right now, so you'll

have to excuse

me for not naming names (better that I don't forget anyone this way). There

were also a

few people, in retrospect, I am sorry I didn't meet. I wanted to thank a few

people in

particular though - Pattie, thanks for bringing me to the grocery store - you

made this a

whole lot easier for me! , Katy, and others - you did a wonderful job

coordinating

the whole ordeal, and it is surely appreciated. If I am lucky enough to

continue attending,

I don't mind helping out a bit during the convention if needed. Katy, I did

take a lot of

notes during Dr. Stanhope's & Dr. Harbison's presentation (in fact I was

sitting next to you

in the first row), though they are not typed out yet. I would be happy to

share them with

you when I have them ready. However, I am without a computer for a few days (I

am at my

parents' house using their computer now). I am sure at this late hour I am

forgetting to thank someone other than the doctors who deserve a big THANKS for

all

their hard work, so I hope you'll excuse me if I am being forgetful!

Although all the presentations at the convention were wonderful, I particularly

enjoyed the

ADD seminar by Phelan. I bought his 1-2-3 Magic book, and have already

read

the whole book. Now I just have to get my husband on board to try using the

program. I

am also a reading/curriculum specialist at a center for severely emotionally

disturbed

students and hope to present some of the things I learned at this seminar to

parents of

children at our school on one of our parent nights.

Other interesting facts I learned at the convention were that IGF1 levels in

many of our

children would be artificially high since our kids are insulin resistant. I am

waiting to

speak to my our local endo about this, as he thought 's GH dosage was too

high,

despite the fact he isn't growing. I also learned adrenarche can last for a

period of several

years, so for any if you who suspect puberty/adrenarche, please stay on top of

it.

was in adrenarche for 6 years and now is stumbling into puberty which we need to

stop!

A few people on this listserve have mentioned kyphosis, though it is not listed

on the RSS

traits brochure. was both scoliosis and kyphosis and was fitted for a

back brace

prior to attending the convention. He was suposed to get it today, but it

wasn't ready yet.

He will get it on Monday now, and will have to wear it for 21 hours a day

(though I am not

sure how I am going to motivate him to do this). If anyone has any

questions/concerns

about kyphosis and the need for a back brace, feel free to contact me.

Whew - hard to believe I can type so much at almost midnight, but I guess I was

on a roll.

That's all for now!

Kim C.