Re: Question - Terri

[Guest guest]

In a message dated 10/2/2003 10:10:54 AM Central Daylight Time,

cfyoung4@... writes:

> Are you still in touch with that original endo? I wonder if you had a more

> tailored and smaller dose than they give now, and if you were better

> monitored post-RAI. >>

No, I was living in Edmonton, Alberta at the time, and I'm not even sure he's

still alive. Actually, at the time he wasn't even called an endo but a

nuclear medicine specialist. As for monitoring, there was very little done

except

semi-annual blood tests. I'm not sure about the dosage. I was very young and

raised in an era (which I no longer take for granted!!!) that doctors knew

what they were doing:-)

Terri

Graves disease 1979; treated with RAI; exothalmia 1982, treated with IV

steroids; since then on one or another form of replacement hormone. New flare

up

of TED with severe double vision, swelling in intraocular muscles and

inflammation in August of 2002. Currently hypoactive. Treated TED with

prednisone.

It worked while on prednisone, but TED came back worse after. Underwent

Orbital radiation June-July 2003. No change yet.

[Guest guest]

> I had RAI in 1979 with little to no side effects. Back then they

> didn't even

> make me use different bathroom facilities for two weeks like I

> understand they

> do now. I have been stable since then, UNTIL a year ago.

Are you still in touch with that original endo? I wonder if you had a

more tailored and smaller dose than they give now, and if you were better

monitored post-RAI. Even if this was the case, the fact that you are

experiencing " fallout " 20+ years later may indicate the true long-term

effects of RAI and should give Sassy and others reason to hesitate before

opting for RAI>

Take care, Fay

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