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RE: Re: Group Meeting Results/DAN Info.

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Liz,

I surround my self with good people like you all. I only deal with what

works for me. He is a pretty good doc. Ironically enough, you were talking

about aluminium today and I opened up my mail box with the results of the

heavy metals test and there it was HIGH aluminium. Will post results shortly

because I will need help. Dan! and I are scheduled to speak next week.

Colleen

[ ] Group Meeting Results/DAN Info.

>

>

>

> Went to the group meeting in my town tonight. My town is 1/4 square

> mile, Mayberry, everyone knows everyone elses beeswax so we signed

> confidentiality agreements but are allowed to do what I am doing

now

> so long as we say, " Someone in my group. "

>

> The group is made up of parents of the following types of kids but

> not all have just speech issues and one, the only one exposed to

> fluoride in large doses, is diagnosed with dyspraxia.

>

> 1) PDD Nos, sensory issues pretty severe.

> 2) Nonverbal, PDD Nos, older sibling possible Aspergers. Going to

> Neubrander, slightly leary about him.

> 3) Me, with one kid with shiners and, off GFCF diet she is whiney,

> has focus issues, food strikes and less unprovoked speech. The

other

> kid is undiagnosed but had signs of apraxia and ASD. Low tone,

> initial trouble producing speech, poor receptive, fine and gross

> motor issues. Those things improved and some resolved on GFCF diet

> and removal of bad water. Articulation issues pend.

>

> The mom of the sensory kid went GFCF in Sept and has seen major

> changes. She went to a DAN (A PhD not MD), Dr. King who operates in

> conjunction with an MD, Dr. Podell, in Springfield, NJ. The mom is

> healing the kid on diet but wanted to know where the kids gut was

at,

> if she was getting the right vitamins and minerals, using the right

> probiotic, etc. She was not interested in chelation. She also

wanted

> alternative remedies to things that have plagued her kid in the

past,

> like ear stuff.

>

> She did poop and pee tests via Drs Data and vitamin measurements

via

> Bioreference. She also did an IGE test. What she discovered was

that

> milk and wheat are an issue and some other things as well, mostly

she

> realized but a few, like soy and rice, must leave the diet. The

> metals testing showed the worst of her stuff was actually, at this

> point " high normal. " The two big things that need addressing were

> aluminum and nickel. Neither are a surprise. We live in a town

where

> aluminum frame windows are made and then there are the vaccines.

> Several industries have operated in this town so nickel is also not

a

> surprise.

>

> The interesting thing was the poop test and what it told her about

> what the kid was and was not getting from the current probiotic and

> how to address it as well as a panel showing bacterial

> susceptibilities and natural agents that could be used to address

> these.

>

> Despite giving calmag every day the kid is low in calcium.

>

> So for $500 for the first visit, $350 paid by insurance, and

another

> $1500 for poop, pee, minerals, vitamin and bacterial susceptibility

> tests and IGG food sensitivity testing and maybe some more for a

> second visit this woman has a blueprint to treat her child. A new

> probiotic was ordered, she is starting CLO, flax seed and some

other

> stuff tailored to her child.

>

> So here I sit, one month shy of my son's EI age out date. There are

> no preschools to take him because I waited. The town preschool that

I

> waived because I thought they would not abide by diet, is actually

> asking the parents I was sitting with to present the GFCF diet to

the

> school parents as it has helped NT siblings with behavioral stuff

and

> parents. I can get him in there in 2 months. After what I have seen

> in that meeting, where AP kids go GFCF and there problems leave

> whereas my kid has aticulation stuff makes me wonder if what is

left

> in my guy is fluoride and lead. I need the testing. I see that now.

> None of these tests seem to address fluoride which concerns me. I

> will test the baby water though. At least I'll have a gauge of what

> went in. I need to know the minerals, the vitamins, the flora info.

> and the remedies. This is the testing we should be able to get when

> we go to a mainstream dr. with a child with delays. I am scared. I

am

> mad. This should not have taken this long.

>

> Hubby is on board. We are behind the 8 ball now and it is time to

> catch up. Janice was right. You have to do it all:

>

> The therapy

> The diet/vitamin and mineral regimen

> and

> the DAN testing

>

> You have to know what is in front of you and how to fix it. My DAN

> knows the tests. Beyond that I don't know if he can give me a

> blueprint like this woman got or if hers is even correct. What I do

> know is I need the tests and I trust my own instincts to find

someone

> knowledgable and trustworthy to help me find a map from there.

>

>

>

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