Developmental Ped Visit Next Week

[Guest guest]

Hello Everyone,

I am gearing up for the first meeting of our transitional meeting (EI to

district), and we have an appointment with the Dev. Pedetrician next week. I'm

wondering if any of you have advice for us.....First of all, I thought my son

had a diagnosis of verbal dyspraxia, but as I reviewed the paperwork, I see that

he does not. The doctor told me that my son had verbal dypraxia, but he put in

writing " phonological disorder " . It's one of the labels mentioned in the Late

Talker with a developmental code.....so no services through health insurance.

Basically, all I really want is for the district to provide similar services (as

that of EI). Currently he's receiving one hour of OT per week, and two hours of

speech therapy (`1:1). Does anyone have any suggestions on how I can convice

him to give my son a diagnosis other than phonological disorder. I just want to

keep as much 1:1 therapy as possible, as well as OT. The speech therapist has

not rendered a diagnosis, but she's always leaned toward apraxia. BUT I'm

concerned he'll leave her practice with no definitive diagnosis.....and I think

a label will be critical in the type of care he'll recieve. He's currently on

fish oil, and doing amazingly well. He bagan the Omegas in August, while he had

only the babble type words and approximations: mama, dada, wawa, momo, baba,

dada for yes, mama for come here, /b/ for bird, /b/ for dog and /b/ for bus.

Now he's talking in three word phrases (and sometimes four), and he's becoming

more intelligible every day.....but he still has issues with prosidy and

intonation and just planning the whole thing (motor planning, I guess). I feel

" in my gut " that his issues could have been quite severe had we not begun a

regime of fish oil. My son is adopted, and his birth mother has a lot of

neurological issues (one of which looks like dyspraxia). I cannot just " leave

this issue " alone. EVERYONE is telling me " don't worry -- he's doing great " ,

but as most of you know, those are very dangerous words when it comes to our

little guys. Any suggestions will help in this case.

I am also seeing a DAN doc (YAAAAY! and hopefully starting vit E soon). Has

anyone had success with a diagnosis from a DAN??

SHould I push the speech therapist for a definitive diagnosis??

I've even thought about sending Kaufman a video.....any ideas on this?

Thank you so much -- You guys are helping my baby boy SO much!

Have you heard of Generation Rescue? They're like TACA only they inclulde all

neurodevelopmental disorders. www.generationrescue.com or .org (I can't

remember the site address.

_________________________________________________________________

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[Guest guest]

Hi :

I was not familiar with phonological disorder so I googled it and

found this very informative link that might help you with your doctor

or SLP. It goes into great detail of the differences of apraxia vs.

phonological disorder. Another thing to think about is does your

child have oral motor problems, oral apraxia--licking lips, blowing

bubbles, etc., any sensory integration dysfunction issues, low muscle

tone, can your child put his lips together to make the " m,b,p " sound,

or put his teeth on his lower lip to do the " f " sound, can he stick

his toungue up behind his teeth to make the " d,t " sound-oral motor.

These are all symptoms of apraxia/dyspraxia or neuro soft signs.

Write down things that you feel are apraxia related if you believe it

is apraxia to present to the SLP or Dev. Ped. In the link it

mentions phonological disorder is not a motor speech problem, apraxia

is. Therapy also looks different for the two disorders. There are

also speech evaluations that could help you and your SLP determine if

it is apraxia. Here is that link also:

/message/10381

and the link to the link section-folders by subject

/links

Also consider a articulation evaluation--articulation is what got my

son therapy through the school. Articulation is part of apraxia.

Hope these are helpful-

Tina

http://members.tripod.com/Caroline_Bowen/phonol-and-artic.htm

Children's Speech Sound Disorders

QUESTIONS AND ANSWERS

>

>

> Hello Everyone,

>

> I am gearing up for the first meeting of our transitional meeting

(EI to district), and we have an appointment with the Dev.

Pedetrician next week. I'm wondering if any of you have advice for

us.....First of all, I thought my son had a diagnosis of verbal

dyspraxia, but as I reviewed the paperwork, I see that he does not.

The doctor told me that my son had verbal dypraxia, but he put in

writing " phonological disorder " . It's one of the labels mentioned in

the Late Talker with a developmental code.....so no services through

health insurance. Basically, all I really want is for the district

to provide similar services (as that of EI). Currently he's

receiving one hour of OT per week, and two hours of speech therapy

(`1:1). Does anyone have any suggestions on how I can convice him to

give my son a diagnosis other than phonological disorder. I just

want to keep as much 1:1 therapy as possible, as well as OT. The

speech therapist has not rendered a diagnosis, but she's always

leaned toward apraxia. BUT I'm concerned he'll leave her practice

with no definitive diagnosis.....and I think a label will be critical

in the type of care he'll recieve. He's currently on fish oil, and

doing amazingly well. He bagan the Omegas in August, while he had

only the babble type words and approximations: mama, dada, wawa,

momo, baba, dada for yes, mama for come here, /b/ for bird, /b/ for

dog and /b/ for bus. Now he's talking in three word phrases (and

sometimes four), and he's becoming more intelligible every

day.....but he still has issues with prosidy and intonation and just

planning the whole thing (motor planning, I guess). I feel " in my

gut " that his issues could have been quite severe had we not begun a

regime of fish oil. My son is adopted, and his birth mother has a

lot of neurological issues (one of which looks like dyspraxia). I

cannot just " leave this issue " alone. EVERYONE is telling me " don't

worry -- he's doing great " , but as most of you know, those are very

dangerous words when it comes to our little guys. Any suggestions

will help in this case.

>

> I am also seeing a DAN doc (YAAAAY! and hopefully starting vit E

soon). Has anyone had success with a diagnosis from a DAN??

>

> SHould I push the speech therapist for a definitive diagnosis??

>

> I've even thought about sending Kaufman a video.....any ideas on

this?

>

> Thank you so much -- You guys are helping my baby boy SO much!

>

>

>

> Have you heard of Generation Rescue? They're like TACA only they

inclulde all neurodevelopmental disorders. www.generationrescue.com

or .org (I can't remember the site address.

> _________________________________________________________________

> Get the power of Windows + Web with the new Windows Live.

> http://www.windowslive.com?

ocid=TXT_TAGHM_Wave2_powerofwindows_012008

>

>