Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 Hi Mylen, I am so sorry. It is so distressing to lose hair like this. Is your hair coming out uniformly all over? Or can you look at your scalp and see round patches of baldness? With thyroid disorders, hair generally sheds all over. But with alopecia, hair will begin to fall out in circular patterns. My husband has alopecia which started as a round bald spot on his beard (about 3 weeks after my RAI...hmmmm) and then moved to his scalp. Hope you will find out what is going on with you... God bless, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 Hi Mylen, I am going through quite a bit of hair shedding myself, and it isn't fun. The best thing you can do is get blood work done, for Free T3, Free T4, TSH, TPO-antibodies, TSI (stimulating antibodies), and an ultrasound (to see if there are nodules). Diagnosis comes first. The Thyroid Awareness 101 thread is a good place to start: http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549 At 10:14 AM 10/28/2003, you wrote: >Hi all, > >I haven't been diagnosed with Grave's, but I am in the >process of researching, what's going on with me. I'm >going through the hell of being seen by doctors who >only care to focus on my High Blood Pressure. I >wanted to do all my homework first prior to seeing a >doctor, actually the tast of finding one who will work >well with me is a challenge itself. I also wanted to >know what questions and things I should know prior to >seeing one, just so I don't walk into an appointment >and be told this that or the other, thus be treated >like a lemming. This group has been very helpful, >whether I have graves or not. >I have been loosing a significant amount of hair, >thinking it's been due to all the stress of figuring >out what going on. Being very careful washing it and >I have taken a great deal of care, using a mild >shampoo, using cool water, and combing using a >detangler, I've got, or used to, have long thick hair. >Now, as I rinsed it, clumps were coming off without me >putting any stress on it. I was starting to tear up >looking at the strands of hair washing down the tub. >Has anyone had this experience and if so what should I >do? I am starting to really feel that I have a >thyroid disease. I am venting so please bear with me. >I have been crying all morning. My husband is trying >real hard to feel for me but right now I need >information to atleast justify my feelings. >Thanks very much for everyone's thoughts and time. > >Mylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 Hi Mylene, You don't mention anything about your age or other factors, but hairloss can also result from dropping estrogen levels [which can also affect weight, blood pressure and mood]. Many women develop thyroid disease when they become menopausal as well. Dr. Larrian Gillespie at www.hormonediva.com is a good resource around dealing with menopause and the medical system regarding hormone issues. She herself suffers from hypothyroidism. She keeps up with current research around hormones, including thyroid disease, and points out the weaknesses/strengths in the research. She also has diet recommendations for keeping balance, suggestions for treatment protocols and she has a great sense of humor. I empathize with the hair loss issue. There are supplements that can help (if you want to know more, just email me privately at seisele@...). But it's important for you to determine cause before too much treatment. Sending you peace, love and encouragement. Hang in there, Sheila -recently diagnosed with TED -hypo for 3 years -surgical menopause 2yrs. ago -on HRT and armour thyroid -osteoporosis due to steroid use for other autoimmune disease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2003 Report Share Posted October 28, 2003 My husband is trying > real hard to feel for me but right now I need > information to atleast justify my feelings. > Thanks very much for everyone's thoughts and time. > > Mylen Even if you don't get a diagnosis of Graves, you may want to get hold of the Letter to Spouses that I believe is linked to the homepage. Understanding how a medical condition can effect one emotionally and knowing that there are so many people who have coped with these issues will give him a feeling of community. You do have to take care of yourself, research, etc., but try to do some small, nice things for him when you can. You'll both feel good and gain from the effort. Take care, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 I have been trying to get this letter with no luck. Everytime I try the link, nothing is there. Cindy Re: Hairloss My husband is trying > real hard to feel for me but right now I need > information to atleast justify my feelings. > Thanks very much for everyone's thoughts and time. > > Mylen Even if you don't get a diagnosis of Graves, you may want to get hold of the Letter to Spouses that I believe is linked to the homepage. Understanding how a medical condition can effect one emotionally and knowing that there are so many people who have coped with these issues will give him a feeling of community. You do have to take care of yourself, research, etc., but try to do some small, nice things for him when you can. You'll both feel good and gain from the effort. Take care, Fay ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Hi Cindy, I have a personal copy of the letter and will send it directly to you and anyone else that is having trouble. Just let me know if the address in the header I see here, is where you want it delivered. -Pam L- 3 1/2 years Graves', TED, and PTU. Remission since Jan. 28th. 2002 ! Key: SLOW reduction of PTU (despite an incompetent endo ! ), eight hour dosing, improved lifestyle, REAL food/ no processed pre-made food, herbs, and looking at the big picture. Triggers are: MSG/any 'flavorings', glutamates ,aspartame, pesticides,high iodine foods. _____________________________________________________ Pills alone only help the symptoms. We must help our bodies to heal. _____________________________________________________ * " What a long, strange, trip it's been " ...Jerry .... Peace* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 yes it is, thanks! Re: Hairloss Hi Cindy, I have a personal copy of the letter and will send it directly to you and anyone else that is having trouble. Just let me know if the address in the header I see here, is where you want it delivered. -Pam L- 3 1/2 years Graves', TED, and PTU. Remission since Jan. 28th. 2002 ! Key: SLOW reduction of PTU (despite an incompetent endo ! ), eight hour dosing, improved lifestyle, REAL food/ no processed pre-made food, herbs, and looking at the big picture. Triggers are: MSG/any 'flavorings', glutamates ,aspartame, pesticides,high iodine foods. _____________________________________________________ Pills alone only help the symptoms. We must help our bodies to heal. _____________________________________________________ * " What a long, strange, trip it's been " ...Jerry .... Peace* Quote Link to comment Share on other sites More sharing options...
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