Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hi All, My son is 31 months and was diagnosed with apraxia last November. He is receiving speech therapy 3x a week and OT 1x a week. The OT has recommended that we get him evaluated by a PT because of low-trunk issues and the non-use of his abdominal muscles. Has anyone had an experience like this with their child? His stomach always seems distended at the end of the day. I am so sensitive to this because I have Crohn's Disease and am very worried that someday he might be diagnosed. Also, we have such a hard time with him when it comes to food. His OT mentioned that it could be sensory-related, since he hates to get his hair washed, cut, and nails clipped, among other things. She is recommending that we brush him. This needs to be done every 2 hours or so. Has anyone brushed their child? I am wondering if there are alternatives out there for dealing with his sensory issues. We just started him on the Nordic Naturals Pro EFA this week and have read that some times sensory issues will dissipate with this supplement. Any advice is greatly appreciated. I was also wondering if a child can react to fish oil? I feel like ever since we started his supplement he wakes up in the middle of the night and is extremely cranky. My husband feels like this behavior has gone on prior to the supplement. Has anyone seen Dr. Layton, a DAN doctor in Towson, MD? Thanks so much, everyone. I tend to be a lurker for the most part, but this board has become invaluable to me. After reading all of your posts (and emailing Colleen after one of her posts - thanks again!) I am determined to set up a plan for . We are well on our way. Thanks again and have a great weekend! Tara _________________________________________________________________ Get the power of Windows + Web with the new Windows Live. http://www.windowslive.com?ocid=TXT_TAGHM_Wave2_powerofwindows_012008 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Do not look at that belly and wonder. Run to a GI. Get the testing listed in the malabsorption folder. Get IGG testing to address hidden and delayed allergies in his diet. It may not solve all of his stuff but he'll sure be in better shape physically and mentally to get the help he needs and he will no longer suffer in ways he cannot communicate to you. If I hear of one more therapist saying food issues are sensory without mentioning addressing allergens I think I might just SCREAM! > > Hi All, > > My son is 31 months and was diagnosed with apraxia last November. He is receiving speech therapy 3x a week and OT 1x a week. The OT has recommended that we get him evaluated by a PT because of low- trunk issues and the non-use of his abdominal muscles. Has anyone had an experience like this with their child? His stomach always seems distended at the end of the day. I am so sensitive to this because I have Crohn's Disease and am very worried that someday he might be diagnosed. > > Also, we have such a hard time with him when it comes to food. His OT mentioned that it could be sensory-related, since he hates to get his hair washed, cut, and nails clipped, among other things. She is recommending that we brush him. This needs to be done every 2 hours or so. Has anyone brushed their child? I am wondering if there are alternatives out there for dealing with his sensory issues. We just started him on the Nordic Naturals Pro EFA this week and have read that some times sensory issues will dissipate with this supplement. Any advice is greatly appreciated. > > I was also wondering if a child can react to fish oil? I feel like ever since we started his supplement he wakes up in the middle of the night and is extremely cranky. My husband feels like this behavior has gone on prior to the supplement. > > Has anyone seen Dr. Layton, a DAN doctor in Towson, MD? > > Thanks so much, everyone. I tend to be a lurker for the most part, but this board has become invaluable to me. After reading all of your posts (and emailing Colleen after one of her posts - thanks again!) I am determined to set up a plan for . We are well on our way. > > Thanks again and have a great weekend! > Tara > > > > _________________________________________________________________ > Get the power of Windows + Web with the new Windows Live. > http://www.windowslive.com? ocid=TXT_TAGHM_Wave2_powerofwindows_012008 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Tara, This may help you, too: http://www.childrenscornerschool.com/anti-infection.htm > > > ........His stomach always > seems distended at the end of the day. I am so sensitive to this > because I have Crohn's Disease and am very worried that someday he > might be diagnosed........ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2008 Report Share Posted January 18, 2008 This is a bit belated, but I wanted to thank everyone for their advice about my son. You don't know how much I appreciate it. We have made a series of appointments for and I feel like we are headed in the right direction. Janice, if you would ever like advice about what I have figured out regarding diet and a chronic illness, please let me know. My crohn's disease has been in remission for close to a year. I am on one strong immunosuppresant drug, but I attribute my feeling good to the supplements I take and what I have eliminaed from my diet. I myself have been through a very difficult 8 years figuring out my health, but it has more than prepared me to help my son to succeed. I have a quick question regarding the dosage of fish oil. I looked through the archives and links, but couldn't find a clear answer. My son has been on ProEFA for over a week, and we have seen some great progress - lots of sounds, tons of more babbling, he has even said dada and mama when prompted - never done that before. My question is the dosage - I started him on 2 pills a day. Is that alright? Should I have begun with just 1 pill. Thanks everyone. This is truly an amazing place to find advice, support, and guidance. Take care, Tara > > > > > > .......His stomach always > > seems distended at the end of the day. I am so sensitive to this > > because I have Crohn's Disease and am very worried that someday he > > might be diagnosed........ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 Yes, it's true that a DOCBand only lasts a max of 16 weeks. Even if there's room to grow, the integrity of the plastic breaks down (stretches and weakens) and the holding points lose their strength, and according to our therapist " you'd just be keeping his head warm. " About 14% of babies need a second band. Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > Is it true that a baby can only wear a Doc Band for 16 week max. Is this true even if there has been show growth and they haven't grown out of it yet? Also, how many babies wind up needing a second band, and does insurance usually cover a second one if they covered the first. Thanks so much! > > -Meredith, mom to Collin 9 months....8 weeks in band > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2009 Report Share Posted March 15, 2009 I also think that needing a second band depends on the age, the severity and whether the parents are happy with the end results or not. Our daughter was a bit older when she got her first DOC band, and after three months, we wanted to see better results with her brachy so we went for a second band. She'll probably be in it for another 8 weeks. Either way, we are glad we got both bands. Also, we have Kaiser and both band were covered at 100%. Leila, Maysa, 14 months, week 7 in DOC band 2 http://mymaysa.wordpress.com/--- On Sun, 3/15/09, bewalderm <meredithea@...> wrote: From: bewalderm <meredithea@...>Subject: few questionsPlagiocephaly Date: Sunday, March 15, 2009, 8:45 PM Is it true that a baby can only wear a Doc Band for 16 week max. Is this true even if there has been show growth and they haven't grown out of it yet? Also, how many babies wind up needing a second band, and does insurance usually cover a second one if they covered the first. Thanks so much!-Meredith, mom to Collin 9 months....8 weeks in band Quote Link to comment Share on other sites More sharing options...
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