Re: Emerence Dr Appt results!

[Guest guest]

Hi ,

That's a great weight for Emerence. I just love getting the good

news of a weight gain.

My son Coby is now 23 months old. He weighs over 20 lbs and is 20

inches long. He had always been very big for having RSS. But he has

been diagnosed by his gene here and by Dr. H. Dr. H told us in July

that she wanted Coby to start GH. He was only 21 months old at the

time. He just started his therapy this week at 23 months old.

Just be prepared...it can all happen very quickly.

once again Congrats on great doc appts.

le, hubby and kids...

Shye 9, Brock 7, and twins Coby(rss) & Carlee 1

[Guest guest]

- great news on the weight! goes back to Mayo Clinic this coming

Friday. We too are going to do the UPD 7 blood test. also recently got

ear tubes put in! I have to say I am a bit concerned about the upcoming appt. -

Dr. H really feels may not be RSS - however, the genetecist really, I

believe, is planning to diagnos her RSS. Do I refuse the diagnose or just let

it happen if that is what she feels. Part of me thinks, well does it really

matter - treatment is no different- but then the other part of me feels that -

its these situations that also creates confusion re: RSS for doctors, research,

etc. I don't know - just thinking out loud. Anyway - glad to here Emerence is

doing well - has just taken 2 to 3 steps on her own this last week! Yes,

my peanut - wearing 3-6 month clothes, size 1 (with room to grow into) shoes

walking! I love it - so cute.

Keep us posted on the blood test results - I will do the same - Jane, mom to

katie - 12 months approx 14#, 26 " .