Re: Reflux/ growth hormone/ Liam etc!!

[Guest guest]

Jody,

I am first concerned about the fact that he started to vomit blood and

he has thickening in his lung tissue along with the reflux. If he is

aspirating at all, bacteria can cause such a bad infection in the

lungs. Make sure he is getting enough fluids every day. water will

adsorb quicker than formula... so make sure he is getting it. I am

also worried that the lining in his esophagus is so very irritated. He

needs a little time to heal and hope he does not get an illius that

will keep him from eating. My instincs are telling me to take things

slow with Liam and don't feel you need to rush into the GH it can wait

a week or so until you figure out what is going on with him. My word

of caution to you is if he starts to spike a fever in the next couple

days monitor it very close and see if it responds to medication. If

the fever does not start to go down or goes down a very small amount

with in a short time take him to the ER and mention the illness he had,

reflux and recent spitting up of blood along with dehydration... better

to be safe..I do not want to scare you but I just do not like the sound

of what has been happening recently with :Liam.

Please keep us informed...I will worry..

J

>

>

> Hi all,

> I need some opinions on treatment!

> The short story is, we now know, Liam has reflux he is being treated

> with zantac, which we are hoping to chage over to losec soon, we

> know he has thickening of his bronchioles(? damage from reflux), and

> Im hoping to convince someone to do a endoscope very soon.

> liam has just had 2 illnesses on top of one another last week he

> stopped tolerating his feeds couldnt keep anything down and ended up

> in casualty vomitting blood. His paediatricin thinks it was

> rotavirus ( I dont). This week he has a horrible chest infection,

> but we are managing to keep feeding him(not alot)

> AND the endocrinologist want him to start growth hormone in 2 weeks.

> I have tried emailing Dr H but she hasnt replied as well as Dr

> Stanhope.

> Do I start growth hormone while Liam still has this reflux issue to

> sort out?

> Im worried he is going to start growing and we arent going to be

> able to get enough calories into him? And it then wont work

> Any opinions greatly appreciated

> Just when you think you have worked out RSS???!!???

> Jody(mum to Liam now back to 9.8kg and Cameron)

>

>

>

>

>

>

>

>

[Guest guest]

Thanks for replying.

Liam is on antibiotics for the chest infection, still coughing heaps

but hasnt had a temp for about 8 hours now, and got up and played in

his room for a while.

Will be watching him closely, we have had so many disappointments

with Liams Drs lately Im hoping to steer clear of the hospital. I

think his gut stopped last week(we would call it paralytic illeus)

when he went to hospital, and thats why he was vommiting blood,but

his paed just had that smug look of 'i know better'and is convinced

he had rotavirus(even though tests didnt show it)

Thanks again, and thanks to you and Joe for the great photos, you

guys are great.

Jody

>

> >

> >

> > Hi all,

> > I need some opinions on treatment!

> > The short story is, we now know, Liam has reflux he is being

treated

> > with zantac, which we are hoping to chage over to losec soon, we

> > know he has thickening of his bronchioles(? damage from reflux),

and

> > Im hoping to convince someone to do a endoscope very soon.

> > liam has just had 2 illnesses on top of one another last week he

> > stopped tolerating his feeds couldnt keep anything down and

ended up

> > in casualty vomitting blood. His paediatricin thinks it was

> > rotavirus ( I dont). This week he has a horrible chest infection,

> > but we are managing to keep feeding him(not alot)

> > AND the endocrinologist want him to start growth hormone in 2

weeks.

> > I have tried emailing Dr H but she hasnt replied as well as Dr

> > Stanhope.

> > Do I start growth hormone while Liam still has this reflux issue

to

> > sort out?

> > Im worried he is going to start growing and we arent going to be

> > able to get enough calories into him? And it then wont work

> > Any opinions greatly appreciated

> > Just when you think you have worked out RSS???!!???

> > Jody(mum to Liam now back to 9.8kg and Cameron)

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Jody,

Right this minute I'm regretting not having enough time to read

messages in a timely fashion. Poor Liam sounds like he's in bad shape!

Growth hormone is NOT important right now. He needs to get his more

urgent medical issues under control first. Most individuals who

suffer from reflux DO NO aspirate into their lungs. For those who do,

lung damage can occur. I am concerned that Liam's " chest infection "

could be caused by aspirating what he is refluxing. How is his

breathing and energy level at baseline? Is it different now he is

sick? Has surgery for reflux ever been mentionned? What do they think

the vomiting blood was from?

Please let me know if I can help in any way. My 2 1/2 yr old daughter

has lung damage from aspirating over a 7 month period, and after

surgery, still requires oxygen over 2 years later. No medication

worked to control her reflux - she had to have a fundoplication

(nissan) to stop her reflux which was threatening her life.

It sounds like Liam's physicians are not working fast enough to get

to the bottom of his ill health.

Best wishes,

>

> Hi all,

> I need some opinions on treatment!

> The short story is, we now know, Liam has reflux he is being

treated

> with zantac, which we are hoping to chage over to losec soon, we

> know he has thickening of his bronchioles(? damage from reflux),

and

> Im hoping to convince someone to do a endoscope very soon.

> liam has just had 2 illnesses on top of one another last week he

> stopped tolerating his feeds couldnt keep anything down and ended

up

> in casualty vomitting blood. His paediatricin thinks it was

> rotavirus ( I dont). This week he has a horrible chest infection,

> but we are managing to keep feeding him(not alot)

> AND the endocrinologist want him to start growth hormone in 2 weeks.

> I have tried emailing Dr H but she hasnt replied as well as Dr

> Stanhope.

> Do I start growth hormone while Liam still has this reflux issue to

> sort out?

> Im worried he is going to start growing and we arent going to be

> able to get enough calories into him? And it then wont work

> Any opinions greatly appreciated

> Just when you think you have worked out RSS???!!???

> Jody(mum to Liam now back to 9.8kg and Cameron)