Re: Re: How To Tell Your Child About Growth Hormone

[Guest guest]

you said your child has been on gh for 4 yrs. How much has she grown? Please

I have to make a decision on gh for my son who is 3

Re: How To Tell Your Child About Growth Hormone

>

>

> ,

>

> When was 4 1/2 and we decided to start growth hormone, we

> decided as a family (grandparents, etc) that we needed to be upfront

> with her; however, we also decided that she was too young to be

> involved in the actual decision making. We already knew that she

> talked about wanting to be taller, not wanting everyone to keep

> picking her up.

>

> We simply told her that she was born with a disorder called

> Silver Syndrome. We showed her photos of other kids with RSS, and

> talked to her about how some kids all have blonde hair, or others

> have brown eyes, kids with RSS all have large foreheads like hers,

> and heads that are bigger than their bodies. It seemed to make

> sense to her. And these kids are also all small. That summer we

> took her to her first MAGIC convention, and that sealed it! She

> loved meeting other kids just like herself.

>

> We also explained to her that kids with RSS need MORE food to grow

> than her friends to. We explained that just like Mommy's car takes

> more gasoline to drive from our house to the school compared to

> Daddy's car that takes a little bit of gas, some kids need more food

> to be able to grow and play each day than other kids.

>

> And that for kids to grow in height, they need a certain type

> of " gasoline " in their bodies called growth hormone. GH is like her

> gasoline. And her body needs MORE gasoline to grow than her

> friends. Because her body can't make more gasoline, we have to give

> her more gasoline. And this is called growth hormone.

>

> We use the Injectease which hides the needle. And we have given

> her shot at about 11pm most nights for 4 years. Rarely does

> she ever wake up.

>

> I strongly advise using ELA-MAX or EMLA the first couple of times

> ( " magic cream " ) simply because it will numb the skin. The fact is

> that the injections barely hurt, but the stress/anticipation can

> make it work. Put the magic cream on about 30 minutes in advance.

> Then gradually, several weeks later, you can slowly stop using the

> magic cream.

>

> Hope this advice helps you. Salem

>

>

>

>

> >

> > Hi Everyone

> >

> > I'm looking for everyone's advice. will be going to her

> second

> > endo visit in December at which time I believe we will be

> discussing

> > growth hormone with him. sometimes says things like she

> wants

> > to be big like so and so and I tell her that if she keeps eating

> good

> > she will. I'm now feeling that I need to change what I say because

> > pretty soon someway somehow I'm going to have to tell her that she

> > needs these shots to help her. Do I need to start telling her

> what is

> > going on about her height? I always tell her what each doctor is

> for

> > such as her cardiologist takes care of her heart and her ped makes

> > sure she gets better when she is sick but since we only had one

> endo

> > visit it doesn't come up much. I'm not certain or sure what I

> need to

> > say or do. I guess its a tough position for any parent because you

> > don't want to put so much emphasize on their size but yet how do

> you

> > prepare them for having to get these shots on a daily basis? I

> know

> > most of the kids start growth hormone at 2 but she is going to be

> 5!

> >

> > One other quick question. When was at the ped's office

> > yesterday for a sick appointment we put her on the scale. She had

> her

> > pants, shirt and socks on but no shoes and weighed 30 3/4 pounds.

> How

> > much of a deduction do you think there would be for her clothing?

> >

> > Thank you

> >

> > B

> > 4 3/4 RSS and Kelli 2 Non RSS

>

>

>

>

>

>

>

>