Re: Check out ICH Slides Collection -

[Guest guest]

Hi Everyone,

I too have looked at the slides and I am distrubed by them.

I agree that they were picked because of the extreme nature of their

asymmetry.

I have reluctantly deleted that message. The photos do show some of

the extreme problems that can come with RSS. However, because they

showed the children naked, with no captions or no discussion of the

associated medical conditions, I get the feeling that this is child

pornographic site and not really and RSS site. If someone can prove

me wrong, then I'll reconsider my decision.

Sorry for the delay in acting on this message.

Ken M

> Hi ,

>

> I, too, was bothered by that site. So much so that I actually

emailed the

> library it came from and suggested that they either caption the

pictures, or

> balance the site with some less involved children. I would hate for

a parent

> of a newly diagnosed RSS child to run across that site, see only

those

> pictures, and think that is what is in store for their child!

>

> I think the child with the bump in his back was an example of

scoliosis. But

> like you, I've never see a child as involved as that poor little

guy. It

> seems like they also picked children with severe examples of

asymmetry too!

>

> Pat (g-ma to , RSS, 34 months, 23.9#, 32.2 " , G-Tube)

[Guest guest]

I agree with your decision. I was disturbed and while I agree with

people distributing medical information through the newsgroup, but

this serves no medical purpose, and is very degrading for the kids in

the RSS and other disorder sites as well. Pictures in context of a

medical report or publication is one thing, but this looks like

exploitation of the children to feed on raw curiosity.

Sabina mother of Naomi

-

-- In RSS-Support , " kmerrith " <kkm@i...> wrote:

>

> Hi Everyone,

>

> I too have looked at the slides and I am distrubed by them.

>

> I agree that they were picked because of the extreme nature of

their

> asymmetry.

>

> I have reluctantly deleted that message. The photos do show some of

> the extreme problems that can come with RSS. However, because they

> showed the children naked, with no captions or no discussion of the

> associated medical conditions, I get the feeling that this is child

> pornographic site and not really and RSS site. If someone can prove

> me wrong, then I'll reconsider my decision.

>

> Sorry for the delay in acting on this message.

>

>

> Ken M

>

>

>

>

>

>

>

> > Hi ,

> >

> > I, too, was bothered by that site. So much so that I actually

> emailed the

> > library it came from and suggested that they either caption the

> pictures, or

> > balance the site with some less involved children. I would hate

for

> a parent

> > of a newly diagnosed RSS child to run across that site, see only

> those

> > pictures, and think that is what is in store for their child!

> >

> > I think the child with the bump in his back was an example of

> scoliosis. But

> > like you, I've never see a child as involved as that poor little

> guy. It

> > seems like they also picked children with severe examples of

> asymmetry too!

> >

> > Pat (g-ma to , RSS, 34 months, 23.9#, 32.2 " , G-Tube)