Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 Hi Jodi, Your family is going through so much right now, all of you will be in my prayers! Leah Mom to and Olivia > Hi all, > I just wanted to let you all know that got the Mic-key low > profile J tube placed today. It took a long time for them to get it > in. They couldn't get it around a couple turns, but after using two > or three guide wires (ugh) they finally got it in. I just hope it > stays! That was one of the problems we had with the regular J tube. > It backed in to his stomach quite a few times. was such a > trooper. I would give this kid the world for all he has been through > and for being as strong as he is. He is acting like himself with no > trouble so far. We are still on 3/4 formula and 1/4 pedialyte, but > here in a little bit he will be up to full strength formula, and then > we just have to work on getting his rate back up to 40 cc's from > where he is at 20 cc's an hour right now. He has had two diarreha > diapers, but has been fine the last couple of hours. I will keep you > all updated on how it goes. > > Let's just hope and pray that it will be a success and that he will > not have to go through the Nissen surgery. I am terrified of > surgery, especially after my husbands 63 year old mother just had > surgery for Crohn's disease and removed about 30' of bowel. Had > complications and almost died last night! It was awful, and the > original surgery happened almost a month ago and has been in and out > of the hospital ever since. Turns out there was seepage from the > surgery and it only happens about 20-25% of the time with this > surgery. What luck she has! But, couldn't win the lottery for > nothing. So, needless to say, I am a little gun-shy of surgeries > right now. She is still in critical condition, but the great thing > is she made it through the emergency surgery she had to have last > night in order to save her life. It was a last ditch > effort......they didn't think she would make it. Thank God she did. > I hope you all will keep us in your thoughts the next few days. We > have no idea what is in store, but hoping she recovers well. It > looks like a long haul though. > > Take care all, > Jodi R. > 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2004 Report Share Posted September 1, 2004 When it rains it pours! I hope recovers well and your mother in law pulls through. Tough surgery but sounds like she is a fighter! > Hi all, > I just wanted to let you all know that got the Mic-key low > profile J tube placed today. It took a long time for them to get it > in. They couldn't get it around a couple turns, but after using two > or three guide wires (ugh) they finally got it in. I just hope it > stays! That was one of the problems we had with the regular J tube. > It backed in to his stomach quite a few times. was such a > trooper. I would give this kid the world for all he has been through > and for being as strong as he is. He is acting like himself with no > trouble so far. We are still on 3/4 formula and 1/4 pedialyte, but > here in a little bit he will be up to full strength formula, and then > we just have to work on getting his rate back up to 40 cc's from > where he is at 20 cc's an hour right now. He has had two diarreha > diapers, but has been fine the last couple of hours. I will keep you > all updated on how it goes. > > Let's just hope and pray that it will be a success and that he will > not have to go through the Nissen surgery. I am terrified of > surgery, especially after my husbands 63 year old mother just had > surgery for Crohn's disease and removed about 30' of bowel. Had > complications and almost died last night! It was awful, and the > original surgery happened almost a month ago and has been in and out > of the hospital ever since. Turns out there was seepage from the > surgery and it only happens about 20-25% of the time with this > surgery. What luck she has! But, couldn't win the lottery for > nothing. So, needless to say, I am a little gun-shy of surgeries > right now. She is still in critical condition, but the great thing > is she made it through the emergency surgery she had to have last > night in order to save her life. It was a last ditch > effort......they didn't think she would make it. Thank God she did. > I hope you all will keep us in your thoughts the next few days. We > have no idea what is in store, but hoping she recovers well. It > looks like a long haul though. > > Take care all, > Jodi R. > 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 It sounds like is doing great! He is such a strong little guy. I hope your family is healed quickly. Hang in there! Blessings and Prayers. (Hannah's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Thank you Leah. I can't tell you how much I apprecite it. MIL is off the vetn now, so we are still waiting to see how she does today. Just slept most of the day yesterday. Jodi R. > > Hi all, > > I just wanted to let you all know that got the Mic-key low > > profile J tube placed today. It took a long time for them to get > it > > in. They couldn't get it around a couple turns, but after using > two > > or three guide wires (ugh) they finally got it in. I just hope it > > stays! That was one of the problems we had with the regular J > tube. > > It backed in to his stomach quite a few times. was such a > > trooper. I would give this kid the world for all he has been > through > > and for being as strong as he is. He is acting like himself with > no > > trouble so far. We are still on 3/4 formula and 1/4 pedialyte, > but > > here in a little bit he will be up to full strength formula, and > then > > we just have to work on getting his rate back up to 40 cc's from > > where he is at 20 cc's an hour right now. He has had two diarreha > > diapers, but has been fine the last couple of hours. I will keep > you > > all updated on how it goes. > > > > Let's just hope and pray that it will be a success and that he > will > > not have to go through the Nissen surgery. I am terrified of > > surgery, especially after my husbands 63 year old mother just had > > surgery for Crohn's disease and removed about 30' of bowel. Had > > complications and almost died last night! It was awful, and the > > original surgery happened almost a month ago and has been in and > out > > of the hospital ever since. Turns out there was seepage from the > > surgery and it only happens about 20-25% of the time with this > > surgery. What luck she has! But, couldn't win the lottery for > > nothing. So, needless to say, I am a little gun-shy of surgeries > > right now. She is still in critical condition, but the great > thing > > is she made it through the emergency surgery she had to have last > > night in order to save her life. It was a last ditch > > effort......they didn't think she would make it. Thank God she > did. > > I hope you all will keep us in your thoughts the next few days. > We > > have no idea what is in store, but hoping she recovers well. It > > looks like a long haul though. > > > > Take care all, > > Jodi R. > > 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 , Thanks, and you are right. She is definitely a fighter. My husband said she had the fear of God in her eyes when he was with her and she told him that she didn't want to die. But, was so scared of what lay before her. Even with her heart racing she fought to stay alive. It took forever to get her stabilized enough to do surgery, and they had to keep her at the local hospital here instead of taking her to Cleveland Clinic where she had the original surgery. Couldn't even life flight her because she was so bad......but she made er' so far. Just hoping and praying she can continue to fight this. And , he's a fighter too. Must be in the blood line! ) So far he's doing okay on the J tube. Mommy is more concerned about it than he is. LOL! Jodi R. > > Hi all, > > I just wanted to let you all know that got the Mic-key low > > profile J tube placed today. It took a long time for them to get > it > > in. They couldn't get it around a couple turns, but after using > two > > or three guide wires (ugh) they finally got it in. I just hope it > > stays! That was one of the problems we had with the regular J > tube. > > It backed in to his stomach quite a few times. was such a > > trooper. I would give this kid the world for all he has been > through > > and for being as strong as he is. He is acting like himself with > no > > trouble so far. We are still on 3/4 formula and 1/4 pedialyte, but > > here in a little bit he will be up to full strength formula, and > then > > we just have to work on getting his rate back up to 40 cc's from > > where he is at 20 cc's an hour right now. He has had two diarreha > > diapers, but has been fine the last couple of hours. I will keep > you > > all updated on how it goes. > > > > Let's just hope and pray that it will be a success and that he will > > not have to go through the Nissen surgery. I am terrified of > > surgery, especially after my husbands 63 year old mother just had > > surgery for Crohn's disease and removed about 30' of bowel. Had > > complications and almost died last night! It was awful, and the > > original surgery happened almost a month ago and has been in and > out > > of the hospital ever since. Turns out there was seepage from the > > surgery and it only happens about 20-25% of the time with this > > surgery. What luck she has! But, couldn't win the lottery for > > nothing. So, needless to say, I am a little gun-shy of surgeries > > right now. She is still in critical condition, but the great thing > > is she made it through the emergency surgery she had to have last > > night in order to save her life. It was a last ditch > > effort......they didn't think she would make it. Thank God she > did. > > I hope you all will keep us in your thoughts the next few days. We > > have no idea what is in store, but hoping she recovers well. It > > looks like a long haul though. > > > > Take care all, > > Jodi R. > > 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Jodi I am glad to hear was such a trooper. How much these little ones have to go through. I hope the J-tube works well and you do not need to have the other surgery. Thinking of you and your family. -Malathi > Hi all, > I just wanted to let you all know that got the Mic-key low > profile J tube placed today. It took a long time for them to get it > in. They couldn't get it around a couple turns, but after using two > or three guide wires (ugh) they finally got it in. I just hope it > stays! That was one of the problems we had with the regular J tube. > It backed in to his stomach quite a few times. was such a > trooper. I would give this kid the world for all he has been through > and for being as strong as he is. He is acting like himself with no > trouble so far. We are still on 3/4 formula and 1/4 pedialyte, but > here in a little bit he will be up to full strength formula, and then > we just have to work on getting his rate back up to 40 cc's from > where he is at 20 cc's an hour right now. He has had two diarreha > diapers, but has been fine the last couple of hours. I will keep you > all updated on how it goes. > > Let's just hope and pray that it will be a success and that he will > not have to go through the Nissen surgery. I am terrified of > surgery, especially after my husbands 63 year old mother just had > surgery for Crohn's disease and removed about 30' of bowel. Had > complications and almost died last night! It was awful, and the > original surgery happened almost a month ago and has been in and out > of the hospital ever since. Turns out there was seepage from the > surgery and it only happens about 20-25% of the time with this > surgery. What luck she has! But, couldn't win the lottery for > nothing. So, needless to say, I am a little gun-shy of surgeries > right now. She is still in critical condition, but the great thing > is she made it through the emergency surgery she had to have last > night in order to save her life. It was a last ditch > effort......they didn't think she would make it. Thank God she did. > I hope you all will keep us in your thoughts the next few days. We > have no idea what is in store, but hoping she recovers well. It > looks like a long haul though. > > Take care all, > Jodi R. > 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 Jodi R, We're thinking of you and glad both procedures went well. Glad is such a trooper and that the emergency surgery went well, too. Between my 2 boys we've had 5 procedures w/ general anesthesia and zillions of tests. It never seems to get easier. The last time I was in the waiting room, I had waited on Willie or Jack for each and every thing any ohter parent was in there for. They kept moving away from me like our luck was contagious. Hang in there and rest up. IT takes a toll. Kathy (Jack, 5, non -RSS and Willie, 3 1/2 , RSS , Periacitn and Zantac) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2004 Report Share Posted September 2, 2004 hey girl!! you guys are in my thoughts and prayers!!! i will try and give you a call tomorrow afternoon!! jodie c. > Hi all, > I just wanted to let you all know that got the Mic-key low > profile J tube placed today. It took a long time for them to get it > in. They couldn't get it around a couple turns, but after using two > or three guide wires (ugh) they finally got it in. I just hope it > stays! That was one of the problems we had with the regular J tube. > It backed in to his stomach quite a few times. was such a > trooper. I would give this kid the world for all he has been through > and for being as strong as he is. He is acting like himself with no > trouble so far. We are still on 3/4 formula and 1/4 pedialyte, but > here in a little bit he will be up to full strength formula, and then > we just have to work on getting his rate back up to 40 cc's from > where he is at 20 cc's an hour right now. He has had two diarreha > diapers, but has been fine the last couple of hours. I will keep you > all updated on how it goes. > > Let's just hope and pray that it will be a success and that he will > not have to go through the Nissen surgery. I am terrified of > surgery, especially after my husbands 63 year old mother just had > surgery for Crohn's disease and removed about 30' of bowel. Had > complications and almost died last night! It was awful, and the > original surgery happened almost a month ago and has been in and out > of the hospital ever since. Turns out there was seepage from the > surgery and it only happens about 20-25% of the time with this > surgery. What luck she has! But, couldn't win the lottery for > nothing. So, needless to say, I am a little gun-shy of surgeries > right now. She is still in critical condition, but the great thing > is she made it through the emergency surgery she had to have last > night in order to save her life. It was a last ditch > effort......they didn't think she would make it. Thank God she did. > I hope you all will keep us in your thoughts the next few days. We > have no idea what is in store, but hoping she recovers well. It > looks like a long haul though. > > Take care all, > Jodi R. > 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Thanks . I appreciate your response. seems to be doing okay so far, except for too many poopy diapers so now his bottom is red, and he has still spit up twice. ( Jodi > It sounds like is doing great! He is such a strong little guy. I > hope your family is healed quickly. Hang in there! Blessings and Prayers. > (Hannah's Mom) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Thanks, Kathy. And you're right. It never gets any easier. I am just glad that 's part is over for now, and we can move on to see if this will help the reflux and aspiration. My MIL is doing a little better. Actually sitting up some and trying to talk. Still not out of the woods though. Jodi R. > Jodi R, > > We're thinking of you and glad both procedures went well. Glad is such > a trooper and that the emergency surgery went well, too. Between my 2 boys > we've had 5 procedures w/ general anesthesia and zillions of tests. It never > seems to get easier. The last time I was in the waiting room, I had waited on > Willie or Jack for each and every thing any ohter parent was in there for. They > kept moving away from me like our luck was contagious. Hang in there and rest > up. IT takes a toll. > > Kathy (Jack, 5, non -RSS and Willie, 3 1/2 , RSS , Periacitn and Zantac) > > > Quote Link to comment Share on other sites More sharing options...
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