Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Hi I'm Jack from holland, A while back I met a woman from Peru (I have a latin background so speak spanish). She has a little girl of 5 years old which lately had been experiencing leg pain. She told me the child was once diagnosed as having Russel Silver syndrome. Her financial situation is such that she cannot provide proper health care for her child. I've decided to help her in any way I can and maybe you people here can help me out as I have a lot of questions. I've just now started my research on this syndrome and am surprised by it's seriousness. I do not want to imagine what will happen to this girl if she continues like this with minimal medical care and support. So my foremost questions at this moment are: - as far as your experience goes, could her leg (bone) pain be related to the syndrome? - She's 5 years old. What are the most important things to do (health wise) for a child that age with this problem? Are there some guidelines, or is this something which must be diagnosed and determined by specialists? - are there any known experts on this subject? or " must-have " links? Any known hospitals in europe/us conserning this? (I'm in holland atm) - what are the standard treatments for this syndrome(I've read about growth hormones a bit, such things).. I'm just starting on this quest, so my apologies if I'm asking the obvious on this list, Thanks for any information you can provide, Jack jack@... Quote Link to comment Share on other sites More sharing options...
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