Jack

[Guest guest]

Hi Jacke:

My name is Betty, I am mexican and of course speak spanish, If your

friend need some help or just talk please give her my email address. My

RSS son is 5 year old too and I have some friends from Peru. I would

like to help her and also I can give her an address of a list server

from latin people.

See you

Betty

Hello everyone

Hi I'm Jack from holland,

A while back I met a woman from Peru (I have a latin background so

speak spanish). She has a little girl of 5 years old which lately had

been experiencing leg pain. She told me the child was once diagnosed

as having Russel Silver syndrome. Her financial situation is such that

she cannot provide proper health care for her child. I've decided to

help her in any way I can and maybe you people here can help me out as

I have a lot of questions. I've just now started my research on this

syndrome and am surprised by it's seriousness. I do not want to

imagine what will happen to this girl if she continues like this with

minimal medical care.

So my foremost questions at this moment are:

- as far as your experience goes, could her leg (bone) pain be related

to the syndrome?

- She's 5 years old. What are the most important things to do (health

wise) for a child that age with this problem? Are there some

guidelines, or is this something which must be diagnosed and

determined by specialists?

- are there any known experts on this subject? or " must-have " links?

Any known hospitals in europe/us conserning this? (I'm in holland atm)

- what are the standard treatments for this syndrome(I've read about

growth hormones a bit, such things)..

I'm just starting on this quest, so my apologies if I'm asking the

obvious on this list,

Thanks for any information you can provide,

Jack

jack@...