Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Here is what the '98 Bartalena study says.... " Among the 148 patients treated with methimazole, 3 (2 percent) who had ophthalmopathy at base line improved, 4 (3 percent) had worsening of eye disease, and the remaining 141 had no change. " Abstract 1998: http://content.nejm.org/cgi/content/short/338/2/73 More Bartalena et al 2000 full text: http://edrv.endojournals.org/cgi/content/full/21/2/168#SEC7 1992 Tallstedt abstract: http://content.nejm.org/cgi/content/abstract/326/26/1733 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2003 Report Share Posted August 10, 2003 Jae, At least for me, no TED at all and I've been on ATD's 9 years. Everyone's different, some get it and some don't. I have had my gums affected, quite badly with an autoimmune disease, benign mucus membrane pemphigus. That was luckily transitory, and has been under control/gone for a couple of years. Others get other symptoms. Not even everyone I know who's had RAI has TED, but it seems that the percentages there are quite a bit higher than with ATd's (now I'm wondering, has anyone found a comparative study?). Terry > > Reply-To: graves_support > Date: Sun, 10 Aug 2003 12:43:31 -0500 > To: graves_support > Subject: Re: Expensive? > > > , > Your story online left me speechless. > > My question to you and others: What are the chances of eye > involvement with Graves while taking ATDs? > > In three years, will my eyes be bulging? > > Jae > > > On Sunday, August 10, 2003, at 07:00 AM, LISAREYNOLDS64@... wrote: > >> Jae, >> >> When I was on Tap, I was uninsured and I believe it cost me $40 a >> scrip. I >> gained a few pounds on Tap, but I was not overweight nor morose. It >> has been >> two years since I took RAI and I still have not found the optimum dose >> of >> replacement to keep me stable. Easy to treat...not. Post RAI, I am >> overweight and >> am one of the 15% the Bartalena study describes as having worsening eye >> disease. As a matter of fact, I am one of the 5% who has it in the >> severe form >> now. You can see before and after pics of me and read my thyroid >> history at the >> link below. If you would like, print out my pics and see what your >> doc says >> about it! RAI is a crap shoot. I gambled and lost big time....but I >> was never >> made aware of the possible contraindications. Be smarter than me, do >> your >> homework. >> >> God bless, >> >> <A >> HREF= " http://hometown.aol.com/lisareynolds64/myhomepage/ >> personal.html " >http://hometown.aol.com/lisareynolds64/myhomepage/ >> personal.html</A> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Hi , thanks for posting these, very educational. I think the missing link in all of it, at least from my observation of those who post here, is long-term follow-up. I'd love to see them revisit all the people they studied at 5, 10, 15 and 20 years! Terry > From: LISAREYNOLDS64@... > Reply-To: graves_support > Date: Mon, 11 Aug 2003 01:56:32 EDT > To: graves_support > Subject: Re: ATD's vs. RAI and TED > > Here is what the '98 Bartalena study says.... > > " Among the 148 patients treated with methimazole, 3 (2 percent) who had > ophthalmopathy at base line improved, 4 (3 percent) had worsening of eye > disease, > and the remaining 141 had no change. " > > Abstract 1998: http://content.nejm.org/cgi/content/short/338/2/73 > > More Bartalena et al 2000 full text: > > http://edrv.endojournals.org/cgi/content/full/21/2/168#SEC7 > > 1992 Tallstedt abstract: > http://content.nejm.org/cgi/content/abstract/326/26/1733 > > > > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
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