Questions

[Guest guest]

I have finally spoken with our local endo about Dr. H's recommendations at the

convention, and again it seems they are batting heads, so I am hoping someone,

maybe

or Jodi can answer these questions. 's IGF1 level is high

(561), not

growing well, and hasn't had an increase in GH dosage for almost a year.

According to our

local endo before the convention, that level was an indicator that his dosage

should be

lowered (not increased), but he could not give an answer on why he though

wasn't growing. Post convention, I told him that Dr. H said you would expect the

IGF1 level

to be high and to increase his GH dosage to whatever it takes to make him grow.

's doctor says that this could put him at risk for diabetes, and he isn't

going to

make him a diabetic just to get him to grow. Dr. H talks a lot oabout Type 2

diabetes, but

I never heard her say that too much GH, producing too high IGF1 levels can cause

diabetes. Anyone know the answer to this one?

Also, Dr. H wants an OGTT repeated, She thought the last one he had wasn't

completed

right, but agian, our local endo disagrees, and says he doesn't have any

problems with his

blood sugar. Other than looking for hypoglycemia (which I don't think

has now),

are there other reasons to do an OGTT?

I am starting to feel very anxious as I feel that we don't have much time left

to get

to grow, and I think he is smaller than most RSS boys his age who have

been on

GH for 3 years. In addition, got a back brace for kyphosis after the

convention,

has been started on some new meds, including one that gave me a good scare last

night

(almost a call to 911), and it just seems that right in time for school to start

next week,

things keep getting harder for , but doesn't it seem that it always goes

that way?

Kim C.