Guest guest Posted August 4, 2004 Report Share Posted August 4, 2004 Hi Cara. I have a question for you. If the doctors here in Norway says that Pernille has RSS, can I email doctor H. to get an appointment? Stine mom to Kristoffer 4 and Pernille soon 2 and RSS? > Hay guys, > > > I wanted to know it anyone else had emailed Dr.H with new > questions for her and had gotten a responce. i email her about a week > ago and have gotten no reply i wounder if i diid it right or if she > just has not ben answering her emails. > Cara(mom) jacob 71/2 RS/SGA ?? breena 4 ethan 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2004 Report Share Posted August 11, 2004 Cara - I am going to be totally blunt here. Dr. H's email address on her convention form is really more for each of your physician's to use to contact her, if there are questions. She has a full patient load, and we run into this problem every year. New families see her at the convention, and then email her with questions, and can't get a response (simply because she is so overwhelmed with trying to answer the phone calls and emails from her regular patients, she can't always afford the time with families who aren't " paying NY " patients.) Now, there are rare occasions when she does email people back. And if there was ever an emergency, you can always contact Katy, and Katy will get ahold of Dr. H. But I do want to set everyone's expectations that Dr. H did volunteer 5 straight days of her time, and so often at the convention, she gets so involved with your children she will say " keep me posted " etc. But the fact is that unless we can come up with a way to fundraise a lot of money to hire her an assistant, she simply will never have enough time to handle her huge patient load, plus the 200+ RSS/SGA families who aren't her regular NY patients. It is heart breaking to me that we as a group only have one physician in the US that has enough experience with the unique gut dysmotility issues of these kids.... UGH!!!! I feel your pain. I would encourage you to email your questions to Katy Frissora, rss2katy@ hotmail.com (although she is on vacation right now), and she will try and answer your questions, and if she can't answer them, she will contact Dr. H directly. That is the most efficient way to get the fastest answers. Hope this helps! I am so sorry it probably isn't the answer you wanted. > Hay guys, > > > I wanted to know it anyone else had emailed Dr.H with new > questions for her and had gotten a responce. i email her about a week > ago and have gotten no reply i wounder if i diid it right or if she > just has not ben answering her emails. > Cara(mom) jacob 71/2 RS/SGA ?? breena 4 ethan 2 Quote Link to comment Share on other sites More sharing options...
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