Re: Question re: kidney abnormalities

July 12, 2004

Where did you read that kidney abnormalities are common in RSS

patients? Are you referring to Wilm's tumors and such possibly? In

the very old literature, that was discussed, but I believe, at least

for the Wilms tumors, that they have discovered that those are the

result of the OPPOSITE type of asymmetry, where the asymmetry occurs

from the smaller side being the NORMAL side. For RSS kids, the

smaller side is the ABNORMAL side.

If you are referring to something completely different about

kidneys, let me know.

That being said, I can tell you that higher blood pressures are a

VERY common characteristic of children born small for gestational

age. In fact, that is one of the biggest benefits of the growth

hormone therapy, actually. It has been found to LOWER the blood

pressure of the SGA/RSS kids to within normal ranges, and the new

lower BP stays that way even after GH is discontinued....

> My daughter was just diagnosed with hypertension (Meg, age 4,

> possible--although I think surely--RSS diagnosis), with some

really

> off the charts bp levels (she will now have a sonogram). I

> understand that kidney abnormalities are common in RSS patients,

but

> cannot find the " type " of disease that is typical (it would seem

> smaller arteries, perhaps?). Does anyone have any knowledge of

> this? Thanks much.

>

> na

> Mom of Meg (age 4) and (age six going on sixteen lately:))

July 14, 2004

> I promise to follow up with Dr. H at the

> convention and get more clarity about it,

> and then we can post it after the convention.

If it turns out that extra protein in the urine has anything to do

with the RSS, I am going to hear SOOOO many " I told ya so's. " Don't

do that to me, Jenn <G>.

-Sharon-

Just an RSS kid that grew up

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