Re: leg asymmetry/lengthening

[Guest guest]

- I know a young teenage boy with RSS, amazing kid. He had

the leg lengthening surgery about 6 months ago (he didn't ever get

to do growth hormone due to the sad fact that his pediatrician never

refered him out....) He is, gosh, I think he is 4'6 " or 4'7 " now.

His mother just died VERY suddenly from an aneurism while at his

younger brother's baseball game. (Please keep " Curtis " and his

family in your prayers everyone.)

, I can ask Curtis if he would be willing to correspond with

you? I know that the surgery was VERY difficult in the first couple

of months (I am sure that they have told you how hard it is), but

now I think he is happy he did it.

>

> quick update. now 8 1/2 yrs, doing " great " on GH (Dr

Stanhope's

> words). Leg discrepancy 6cm, above and below knee. Got go-ahead

for leg

> lengthening at last (after over two years). Can lengthen up to 30%

of bone,

> so theoretically could stretch 7-8cm below knee. 6-9 month waiting

list. We

> have to see a surgeon, psychiatrist, social worker, and a bunch of

other

> people BEFORE he goes for op. 's still skinny, but growing

well

> vertically. I do believe that GH contributes to him getting a bit

stressy /

> aggressive every now and then, but no regrets. email me at work if

you wish

> to write, as i rarely get to read postings.