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What happens after EIP?

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Hi Guys,

Several months ago, Jillie my 27 month old RSS daughter saw her

neurologist for a routine check up. She told me that when EIP ends

on Jillie's 3rd birthday, that the school system becomes responsible

for continuing her therapies. She also said that I have to send her

to pre school for the therapies. This possibility worries me a great

deal. I don't think Jillie will be ready for school in 9 months time

from a medical standpoint. She requires oxygen for at least 50% of

any 24 hr period. She is predominantly GT fed and she is so

hypotonic - not walking or talking yet etc.. If pre school is not

mandated for a regular child, how can it be mandated for one with

special needs? If I refuse to sign her up for pre school, will the

school system refuse to provide therapy? Having been raised in

England and doing all my basic schooling there, I am woefully

ignorant of the school system here.

Do any of you have a non RSS child who is much taller/bigger than

his/her age? I am preparing to send my 5 yr old son to Kindergarten

this Tuesday. He is at least 50 inches tall and 50+ pounds. He

easily looks like an 8 or 9 yr old child. I am very worried that he

will be expected to act older because of his appearance and will not

be treated like a 5 yr old. I find this outside the school

environment. Can anyone relate? Does anyone have words of wisdom.

It's strange having 2 children who are as different as possible.

Neither are on a growth chart. One social and eager to learn, the

other timid and content to just hang out with Mama. I fear that

Ethan will get away with nothing because of his size and Jillie will

get away with murder because of her size.

Any thoughts or info greatly appreciated.

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