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Re: Q re Weight Loss - Help needed

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One of our twins, our son, has lost weight on the diet, but we are kind of

doing a Feingold diet as well, with no artificial colors, no phenols, not

really any natural colors other than green beans. We found out just after we

first noticed the weight loss that he has a pretty bad bacteria overgrowth

and are treating it. He's doing better now and I'm proud to say that just

this afternoon had his very first solid stool. We were all so shocked and

amazed we nearly couldn't change his diaper and I, for a brief moment

considered taking a picture of it for our scrapbooks, then reconsidered!

We've had battles (mainly losing ones!) with diarrhea since they were born.

Donna

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possibly withdrawl-poddibly allergy to soy?most kids never eat much of it

till goin g gluten free,If you enticed her gluten free with lots of sweet

gluten free foods{I admit I did at first} maybe a yeast problem has cropped

up. Good luck I hope ypu solve the weight loss problem. F

Q re Weight Loss - Help needed

> Dear All,

>

> Our daughter Frances (6) has been casein-free since the Easter break and

on a completely gluten-free diet since mid-June. . Frances not only has a

diagnosis of autism but has two other diagnoses as well, atypical Angelman

or atypical Rett Syndrome ( severe epilepsy, global developmental delay,

sleep and movement disorder, challenging behaviour and totally non-verbal -

in short, the lot )

>

> On the casein-free part of the diet we saw a noticeable improvement in her

overall awareness and behaviour. Since we started to reduce the gluten in

her diet her awareness has deteriorated badly, the babbling has stopped

again (no more " mamamama " L ), she is no longer ticklish and has

withdrawn into her little shell again. Even worse, we have noticed a

considerable weight loss and diarrhoea. Frances used to be a very solid (NOT

fat, just chunky " , for want of a better word) little girl, now we can feel

her ribs sticking out... There is no indication that she has a bug or

infection. She is still eating but appears to be incredibly tired and

chooses to crawl instead of walking and will lie down on the floor due to

sheer exhaustion.

>

> I will be taking her to our family GP on Monday but I wonder whether these

could be withdrawal symptoms? Has anybody else encountered similar problems?

At this point I am extremely worried about her and would appreciate any

advice/comments from you all.

>

> Beatrice mum to Frances and Nick

Scotland

>

>

>

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> Dear All,

>

> Our daughter Frances (6) has been casein-free since the Easter

break and on a completely gluten-free diet since mid-June. . Frances

not only has a diagnosis of autism but has two other diagnoses as

well, atypical Angelman or atypical Rett Syndrome ( severe epilepsy,

global developmental delay, sleep and movement disorder, challenging

behaviour and totally non-verbal - in short, the lot )

>

> On the casein-free part of the diet we saw a noticeable improvement

in her overall awareness and behaviour. Since we started to reduce

the gluten in her diet her awareness has deteriorated badly, the

babbling has stopped again (no more " mamamama " L ), she is no

longer ticklish and has withdrawn into her little shell again. Even

worse, we have noticed a considerable weight loss and diarrhoea.

Frances used to be a very solid (NOT fat, just chunky " , for want of a

better word) little girl, now we can feel her ribs sticking out...

There is no indication that she has a bug or infection. She is still

eating but appears to be incredibly tired and chooses to crawl

instead of walking and will lie down on the floor due to

sheer

exhaustion.

Hi Beatrice,

Are you giving her any supplements? The reason I ask is that I was

wondering if she may be anemic. My 23mo old nt daughter is on iron

sup and she was displaying some of the same symptoms, very tired,

laying on the floor alot etc. Just another thought, maaybe you should

ask for Hematocrit, Hemoglobin (spelling?) when tou visit her Dr.

Hope this helps

Marcie

>

> I will be taking her to our family GP on Monday but I wonder

whether these could be withdrawal symptoms? Has anybody else

encountered similar problems? At this point I am extremely worried

about her and would appreciate any advice/comments from you all.

>

> Beatrice mum to Frances and

Nick Scotland

>

>

>

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Hi Donna,

My first thought when I got to line 6 of your post was " go take a

picture! " - that's what I would have done :-))

We've never really had a problem with weight loss/diarrhoea so are quite

shocked. We will be getting her blood test results back tomorrow, who

knows... Do you not find the Feingold diet very restrictive? Another mother

suggested cutting out all the salicylates (sp?) but there is so little in

Frances' life for her to enjoy (she has *many* other problems apart from her

autistic side...is classed as profoundly physically and mentally disabled)

that we feel we cannot take away the few little joys she does have, like

apples for example. It seems positively cruel to take them away from her.

She is MFG and aspartame free, though.

Thanks for taking the time to reply!

Beatrice mum to two " special " kids

Re: Q re Weight Loss - Help needed

> One of our twins, our son, has lost weight on the diet, but we are kind of

> doing a Feingold diet as well, with no artificial colors, no phenols, not

> really any natural colors other than green beans. We found out just after

we

> first noticed the weight loss that he has a pretty bad bacteria overgrowth

> and are treating it. He's doing better now and I'm proud to say that just

> this afternoon had his very first solid stool. We were all so shocked and

> amazed we nearly couldn't change his diaper and I, for a brief moment

> considered taking a picture of it for our scrapbooks, then reconsidered!

> We've had battles (mainly losing ones!) with diarrhea since they were

born.

> Donna

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