Re: need advice..........

May 20, 2001

Hi ,

Slip ups were very obvious when we startde the diet but after 5 months into

the diet, my son snuck a half a piece of bread from his sisters sandwich. i

gave him Enzymade about an hour later and he had no reaction. Do I think he

was still effected by the gluten? Yes. It seems over time the mistakes

become less obvious but they were still felt by the body in my opinion. I

do not believe that slip ups should be intentional as i can not be for sure

at what point the damage occurs and I deeply value his health. i dont want

to take any risks. i do however, feel that when you are eating out (Stil

should be rare in my opinion) and there is a cross conatmination isse, that

the enzyme in combination with more time for the gut to have healed may be

okay. i am not ready to rely on this though because his brain is not worth

the risk. It seems that after acouple weeks of slip ups you will begin to

notice some very undesirable behaior--by that point , who knows what

unneccesary damage was done. (Some kids still react right away but

apparently some of our children dont). So an occassonal restaurant dinner?

My advice is that if it is GFCF and with an enzyme(and on occassion) would

be fine. I know we all just want a life for goodness sakes. take care and

glad your sweetie is doing well. Boy, this is not an easy life style!!

need advice..........

>

> Hi, I am just wondering if any of you have any words of advice for me.

For those who have read any of my posts before, I am the mother of

(age & 7), and he has responded wonderfully to this diet. He has a bit of an

attention problem, but besides that he is fine. He has normal speech,

normal intelligence, etc. He had been receiving EPD (enzyme potentiated

desensitization)...he received 6 shots, and then the FDA banned it. He

still is gluten and casein free, but has recovered from his corn, egg,

preservative allergies. The other day we had a slip-up, the first one in

years. My husband accidentally bought the Van's waffles that are made with

wheat, rather than the gluten-free kind. He gave these to for

breakfast. They have wheat and milk powder in them. We quickly gave him a

pepcid AC, and he has had absolutely no reactions. His reaction used to be

severe to accidents such as this. Now I am wondering if the EPD treatment

may have helped his gluten/casein allergies more than I thought, because I

had been too afraid to try these, although he has had a couple shots since

we gave him some gluten and he reacted to it. I am thinking maybe it is

just the fact that he has been on the diet 3 1/2 years and maybe he would

not have as bad a reaction to it now. I am definitely not going to just

start adding wheat or milk back to his diet, but I am wondering if maybe he

could handle an occasional restaurant dinner or something???...Anyone have

any suggestions as to how I could now tell if he still has the severe gluten

and casein allergy he used to without harming him in any way?

>

> Thank you,

>

May 20, 2001

>I am wondering if maybe he could handle an occasional restaurant dinner or

>something???...Anyone have any suggestions as to how I could now tell if he

still has the >severe gluten and casein allergy he used to without harming

him in any way?

We do this perhaps once a month. I try to pick foods that have minimal

amounts of gluten and casein. We up the amount of enzymes my son takes for

three days before during and after the indulgence. I'm not advocating or

recommending anyone do this. Also, for anyone who has been on the diet for

a considerable amount of time and is considering reintroducing gluten and

casein on a full time basis - DON'T! A good friend of mine had her son on

the diet for 4 years and she reintroduced all his old foods. Within two

weeks he was a complete mess. He regressed and became quite violent.

Thankfully, he is back on the diet and doing very well.

a - Madison WI

May 20, 2001

I think its because he has been gf/cf for so long, he may have actually

cleared the stuff from his body so one slip up wasnt enough to warrent a

reaction. It could however still be able to cause a unotice reaction inside

his body, so if it were me I would still stick to a strict gf/cf diet. As

for an occasional restaurant meal as long as it is gf/cf to the best of your

knowledge I would say maybe he would be ok with cross contamination risks at

this point, but it sounds like he is doing so well I might even be too

nervous to risk it even a little. F need advice..........