Inappropriate private emails

[Guest guest]

Hi all,

I'll look into the less than polite and suportive private email recently posted

on the list.

If anyone receives an email that is unsettling or somehow insulting, please send

that email, privately, to the moderators and we'll take care of it.

We're up to over 700 people on the list now and bound to have a few bumps in the

road. I'd advise everyone to roll your eyes, notify the moderator, and move on

without a second thought if something unpleasant comes your way.

All in all, we're operating pretty well and I remain grateful for that!

Best,

B

Re: RAI - this is support?

in a private response from BRH1610 this is what I received after telling that

I had had RAI last August and so far had no regrets-

" My choice is remission with my gland intact.

I am sick of people coming to the group as it is, and talking RAI- it is

out-dated and unecessary treatment and you know it. I thought I was sending

this

to the group! O WELL! "

and on a different priviate response-

" I have seen a few posts that say the samer thing. It's not nearly as bad

as that S person- she deserved to stay and say as she feels, but someone who

keeps doing this RAI is good is really obliterating others. RAI is bad. It

is

radio iodine, radio active iodine!!! for christ's sake! "

geez, this does not seem very supportive. I was not under the impression

that to be a part of the group you couldn't post a positive reaction to RAI

treatment. If I were still as hyper now as I was prior to RAI a response

like

this would've been extremely stressful and I seriously doubt that I would ever

return to the group or even want to try any other groups for fear of a tounge

lashing like that.

I thought the group was here for anyone and everyone who has a concern over

hyper/hypo symptoms and the different forms of treatment. No doubt everyone

on

the group would love for remission to be the end result. I know I hung onto

that hope for years before finally making the decision that I made for myself.

While I would not

tell anyone what course of treatment is right for them I was unaware that

anyone on this group would be so mean about another person's choice.

Fortunately

I am not

in hyper hell anymore so while I find this person's e-mail tone totally out

of line I find that I just feel sorry for her and wished her the best of luck

with the treatment choice

that she does end up considering - and hopefully she will go into remission -

seems

like she certainly needs it.