Re: Test Results - Hypo for me??? To ...

May 28, 2003

Hi Barb-

I did have IBS at my hyper outset and thought it would go away after RAI.

It didn't though even when I became hypo. Maybe I have celiac disease like

some of the other people on this list. I've never checked.

If I were you I'd go to the ATA site and pull something up or go to Pubmed

or Medline and try to find the abstract. It's really upsetting when doctors

think that just because you're within the normal range, you aren't sick. If

you tell him at the outset that you have no intention of going outside the

normal reference range for any of your labs, he's the unreasonable one. If

he doesn't do that for you, you should find a doctor that will.

And you can ask him to pull up studies supporting his/her view that it's

impossible to have symptoms when you're within the normal range. He won't

be able to (and will probably tell you it's his experience) and you'll be

able to say " If it doesn't matter because patients don't have symptoms no

matter where they're at in the reference range, it shouldn't matter where in

the normal reference range I'm at. So let's try it. "

Take care,

dx & RAI 1987 (at age 24)

> Hi - I just posted to Terry my update after

> talking to my endo. I am so depressed. My endo does

> NOT recognize the new parameters, even though he knows

> of them. My test results are " beautiful. " (No,

> they're not.) I am just beside myself.

>

> Thanks for all your info - I had already printed out

> Elaine's notice about the new TSH reference range, but

> as it turns out, my endo is aware, just not willing to

> give up what's been used for decades. I cannot go

> another 5-6 weeks before testing again, only to be

> that much more hypo. How stupid is that??

>

> It seems to me that these are some pretty substantial

> changes over the past couple of weeks, and both close

> to (or beyond) reference range limits. But according

> to my endo, apparently you cannot have symptoms while

> you are within (outdated) normal limits.(??)

>

> , did you have hyper bowel symptoms initially?

> I'm not sure how common that is, and I was never very

> hyper, but those are what brought me in the doc in the

> first place. I was so pleased to sort of have them

> under control for the last couple of months. Sort of.

> Anything was an improvement. But now I don't feel

> it's under control at all...

>

> Feeling sad,

May 28, 2003