Re: Re: DEL Important!-Elaine!

[Guest guest]

Del,

Are you having a scan or an ultrasound? The scan surely is radioactive

iodine...

I 123. This is how they see how much iodine your thyroid takes up. You have

already been diagnosed with Graves, this test is absolutley unnecessary. If

they suspect you have a thyroid nodule, you can opt for the ultrasound.

Please don't have this test!!!!!!!!!!!!!!!

[Guest guest]

Del,

I'm adding Elaine's name to the subject line. So far as I've ever heard,

they use radioactive iodine and NOTHING else to do the uptake test--it is

however a different isotope than the one they use for RAI. I'm pretty sure

I'm correct here-but Elaine would be the definitive source for accurate

info, not me. You can get all the diagnostic info without this test, an

ultrasound of your thyroid and a TSI antibody test will give the diagnosis.

The only " real " reason to do an uptake that I'm aware of, is to determine

your future dose of RAI--and that, with your eye problems and allergy to

iodine, is about the worst thing you could ever do to yourself.

Terry

>

> Reply-To: graves_support

> Date: Sat, 15 Nov 2003 17:56:16 -0000

> To: graves_support

> Subject: Re: DEL Important!

>

> Thanks Terry,

>

> I really questioned this too and was assured that they will not be

> using iodine in this test. They are using some " other kind " of

> contrast. I will be checking this again when I go Monday. If I can't

> get the answer that assures me that there is no iodine in it, I will

> be walking out and straigt to the Doctor!

>

> All of the tests that has to be done, knowing when to agree and

> having to double check what is being used, is really stressing me

> out. I only hope that this all get a little easier as time marchs on!

>

> I really appreciate you for bring this to my attention.

>

> Del

>

>

>

>

>> Del,

>>

>> I recall you mentioning that you are allergic to iodine. The

> uptake test

>> gives you a dose of radioactive iodine. That's what they use, to

> test how

>> much of it your thyroid " takes up " , basically.

>>

>> It's NOT a necessary test, as has been posted by other people

> here. It CAN

>> and probably will, at the very least, badly aggravate your eye

> condition.

>>

>> So why are you letting them do it? Perhaps this info went right by

> you

>> 'cause you're so inundated with new info, that happens to a lot of

> us when

>> newly diagnosed. But serious consideration of saying " doc, I want

> to get an

>> ultra sound and TSI test instead " should be the order of your day!

>>

>> Terry

>>

>>> From: " tripod2655 " <tripod2655@h...>

>>> Reply-To: graves_support

>>> Date: Fri, 14 Nov 2003 23:39:48 -0000

>>> To: graves_support

>>> Subject: Meds

>>>

>>> Thanks again for all your great info and wish's.

>>>

>>> I picked up the tapazole and it is 10mg 3 times a day. I can't

> start

>>> to take it until after my up take test Monday and Tuesday. I'll

> post

>>> my test results on the blood work next week after my doctors

> appt.

>>>

>>> Thanks again,

>>>

>>> Del

>>>

>>>

>>>

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