Thanks Malathi

[Guest guest]

Malathi,

Thank you. Yeah, he really amazes me sometimes, but it seems like all

of our kids just have an inner strength we will never

understand. ) He is stronger than I am, I'll tell you. My little

hero man. We are hoping we can avoid the surgery at all costs.

Jodi

> > Hi all,

> > I just wanted to let you all know that got the Mic-key low

> > profile J tube placed today. It took a long time for them to get

> it

> > in. They couldn't get it around a couple turns, but after using

> two

> > or three guide wires (ugh) they finally got it in. I just hope

it

> > stays! That was one of the problems we had with the regular J

> tube.

> > It backed in to his stomach quite a few times. was such a

> > trooper. I would give this kid the world for all he has been

> through

> > and for being as strong as he is. He is acting like himself with

> no

> > trouble so far. We are still on 3/4 formula and 1/4 pedialyte,

> but

> > here in a little bit he will be up to full strength formula, and

> then

> > we just have to work on getting his rate back up to 40 cc's from

> > where he is at 20 cc's an hour right now. He has had two

diarreha

> > diapers, but has been fine the last couple of hours. I will keep

> you

> > all updated on how it goes.

> >

> > Let's just hope and pray that it will be a success and that he

> will

> > not have to go through the Nissen surgery. I am terrified of

> > surgery, especially after my husbands 63 year old mother just had

> > surgery for Crohn's disease and removed about 30' of bowel. Had

> > complications and almost died last night! It was awful, and the

> > original surgery happened almost a month ago and has been in and

> out

> > of the hospital ever since. Turns out there was seepage from the

> > surgery and it only happens about 20-25% of the time with this

> > surgery. What luck she has! But, couldn't win the lottery for

> > nothing. So, needless to say, I am a little gun-shy of surgeries

> > right now. She is still in critical condition, but the great

> thing

> > is she made it through the emergency surgery she had to have last

> > night in order to save her life. It was a last ditch

> > effort......they didn't think she would make it. Thank God she

> did.

> > I hope you all will keep us in your thoughts the next few days.

> We

> > have no idea what is in store, but hoping she recovers well. It

> > looks like a long haul though.

> >

> > Take care all,

> > Jodi R.

> > 's mommy