Re: First encounter with ignorance...VENT..Long

[Guest guest]

Hi Mimi

I'm glad to here Isaac did so well for you. The aunt on the other

hand . . . You would think she would know better but maybe people do

it to her and she finds no harm in it, maybe? Who knows, in any event

you don't have to deal with her too much. Some people are just so

STUPID in plain English. It could be that she feels that she need to

put someone else down so it wasn't her son this time. Be happy that

Isaac didn't understand the comment.

B

4 3/4 RSS and Kelli 2 Non RSS

>

> Hi All-

>

> We took Isaac on his first road trip to visit my father-in -laws

> family in corpus christi(about 6 hours from where I live). All of his

> brothers and sisters and his mother live there. Isaac did great in

> the car and we were having a great time visiting with everyone since

> none of that side of the family had seen Isaac (only in pictures).

> Isaac is also " carrying on the Garza name " which is a big deal to

> Art's side of the family. Anyway, we are all over at Art's

> grandmother's house chatting with realatives and as I am sitting

> there holding Isaac and Art's aunt starts asking questions and

> talking about how " small he is " . I explained RSS and told her it was

> a type of dwarfisim. Do you know what she said... " Oh so he is going

> to be a midget, that's cool he can go work in the circus " . Since it

> was a family gathering and I didn't want to make a scene I bit my

> tounge but I could feel the anger swell in my throat. It is one thing

> for strangers to make comments like that but family members? I

> couldn't believe it! To make matters worse she has a son with Prader

> Willi Syndrome so you would think she would be a little more

> sensitive!!

>

> Besides that..the rest of the trip was great and Isaac was an awesome

> traveller considering the 6 hour drive!

>

> Thanks for listening!

>

> Mimi

> (mom to Isaac RSS, Hypothyroidism, 9 mos 12lbs 5 oz, 24 1/2 " )

[Guest guest]

Hi Mimi,

Sorry you had to go through that. I've had a similar comment made

about Autumn but it was from a neighbor/friend, not family. She

said " so she's going to be a midget? Hmm, she doesn't have stubby

arms. " as she lifted Autumn's arms and flopped them down and gave her

a weird look. I couldn't believe how someone could just say

something like that. I was so mad and I just wanted to let her have

it, but instead I changed the subject and then went inside fuming.

She has said nothing about it since then though. Some people just

need to keep their mouths shut, the world would be a better place.

mom to Autumn 9 mos

>

> Hi All-

>

> We took Isaac on his first road trip to visit my father-in -laws

> family in corpus christi(about 6 hours from where I live). All of

his

> brothers and sisters and his mother live there. Isaac did great in

> the car and we were having a great time visiting with everyone

since

> none of that side of the family had seen Isaac (only in pictures).

> Isaac is also " carrying on the Garza name " which is a big deal to

> Art's side of the family. Anyway, we are all over at Art's

> grandmother's house chatting with realatives and as I am sitting

> there holding Isaac and Art's aunt starts asking questions and

> talking about how " small he is " . I explained RSS and told her it

was

> a type of dwarfisim. Do you know what she said... " Oh so he is going

> to be a midget, that's cool he can go work in the circus " . Since it

> was a family gathering and I didn't want to make a scene I bit my

> tounge but I could feel the anger swell in my throat. It is one

thing

> for strangers to make comments like that but family members? I

> couldn't believe it! To make matters worse she has a son with

Prader

> Willi Syndrome so you would think she would be a little more

> sensitive!!

>

> Besides that..the rest of the trip was great and Isaac was an

awesome

> traveller considering the 6 hour drive!

>

> Thanks for listening!

>

> Mimi

> (mom to Isaac RSS, Hypothyroidism, 9 mos 12lbs 5 oz, 24 1/2 " )

[Guest guest]

Thank you all so much for your posts..they made me feel better since

I know at some point in time many of you have had a similar

expierence. I am sure it won't be the last time someome will make a

stupid comment..so next time I will be more prepared. I knew that you

would understand more than anyone else would!

Thanks again!!

Mimi

(mom to Isaac, RSS, hypothyroidism, and not going to work in the

circus (unless he chooses to!!)

[Guest guest]

Mimi - Your relative's reaction is exactly why my husband no longer

will let me explain that RSS is a form of primordial dwarfism (and

I've learned, painfully, that he was right). People's minds connect

dwarfism with " achondroplasia " dwarfism. So.... if I am educating

people in a more formal setting or through written documents, I use

that description. But when referring to , I tend to say " a

rare genetic growth disorder " (not inherited/recessive but more

random, like with Down's Syndrome where it is just a " fluke " ). I

will refer to the fact that the average RSS girl reaches 4'7 " or

so. That usually makes them realize HOW short these kids are....

I am sorry that you had to deal with such ignorance from someone who

should know better. At least Isaac has incredible parents who DO

know better....

>

> Hi All-

>

> We took Isaac on his first road trip to visit my father-in -laws

> family in corpus christi(about 6 hours from where I live). All of

his

> brothers and sisters and his mother live there. Isaac did great in

> the car and we were having a great time visiting with everyone

since

> none of that side of the family had seen Isaac (only in pictures).

> Isaac is also " carrying on the Garza name " which is a big deal to

> Art's side of the family. Anyway, we are all over at Art's

> grandmother's house chatting with realatives and as I am sitting

> there holding Isaac and Art's aunt starts asking questions and

> talking about how " small he is " . I explained RSS and told her it

was

> a type of dwarfisim. Do you know what she said... " Oh so he is

going

> to be a midget, that's cool he can go work in the circus " . Since

it

> was a family gathering and I didn't want to make a scene I bit my

> tounge but I could feel the anger swell in my throat. It is one

thing

> for strangers to make comments like that but family members? I

> couldn't believe it! To make matters worse she has a son with

Prader

> Willi Syndrome so you would think she would be a little more

> sensitive!!

>

> Besides that..the rest of the trip was great and Isaac was an

awesome

> traveller considering the 6 hour drive!

>

> Thanks for listening!

>

> Mimi

> (mom to Isaac RSS, Hypothyroidism, 9 mos 12lbs 5 oz, 24 1/2 " )