Fwd: about Deniz from Rifat

[Guest guest]

Rifat,

My son Max is 16 years old. He has RSS. He still has a g-tube, but

we only have to use it when he is sick. For most of his life from

birth until about age 8 he was fed mainly using the g-tube. But we

had a great speech therapist who worked on him with oral

sensitivity, so he was interested in at least tasting food. It took

years to get him to where he would eat enough during the day, but

eventually he did do it.

One good thing about the feeding tube is that it takes the pressure

off of you to force her to eat. You can offer her food to taste,

but you don't have to worry about her getting enough. As time goes

on and she is more aware of others eating around her, she will take

more of an interest. But I do think you should try a speech

therapist, if you have them in Turkey, to help her oral aversion to

food.

My sister-in-law lived in Turkey for a few years. She and my

brother go back there every two years to visit the family she lived

with and to tour the country. They love it there. If there are

questions about Deniz that I can pass on to her, then please let me

know. She may be able to tell me where you can go for more help.

Jodi Z

[Guest guest]

Hi Jodie,

Thank you very much .There is no specialists or therapists in Turkey.

We are looking for in Germany. I think there is a chance at

Clementine kinder hospital in furt. Their schedule had some

therapy(chewing & swallowing therapy who with feeding ng or g-tube

from today) just we need. We'll be pleasure if your brother

visit to us. Thank you.Greetings Rifat

>

> Rifat,

>

> My son Max is 16 years old. He has RSS. He still has a g-tube,

but

> we only have to use it when he is sick. For most of his life from

> birth until about age 8 he was fed mainly using the g-tube. But we

> had a great speech therapist who worked on him with oral

> sensitivity, so he was interested in at least tasting food. It

took

> years to get him to where he would eat enough during the day, but

> eventually he did do it.

>

> One good thing about the feeding tube is that it takes the pressure

> off of you to force her to eat. You can offer her food to taste,

> but you don't have to worry about her getting enough. As time goes

> on and she is more aware of others eating around her, she will take

> more of an interest. But I do think you should try a speech

> therapist, if you have them in Turkey, to help her oral aversion to

> food.

>

> My sister-in-law lived in Turkey for a few years. She and my

> brother go back there every two years to visit the family she lived

> with and to tour the country. They love it there. If there are

> questions about Deniz that I can pass on to her, then please let me

> know. She may be able to tell me where you can go for more help.

>

> Jodi Z