Re: Ped. Appt. --> bit of a vent

[Guest guest]

Leah,

I can understand your frustration. Was this a pediatric endocrinologist? I

know the

standard practice isn't to undress a child that old to weigh him/her, but I do

agree with

you that when you are talking about an almost 5 year old girl who weighs 18

lbs., you

would think the doctor's office would be a bit more thorough as 2 lbs. of

clothes on an 18

lb. child is a lot bigger percentage than on a 50 lb. child! I don't know how

severe Olivia's

reflux is and am not familiar with Prilosec, but I do know that depending on the

severity of

the reflux, GI doctors can prescribe higher dosages than the norm for these

types of meds.

My 5 mo. old non-RSS daughter has been on 10 mg Nexium twice a day since she was

2

months old, and I have had one pharmace refuse to fill the prescription saying

the dose

was too high. Her reflux is worse than either of my other 2 kids had it,

including my RSS

child. I am praying she grows out of it!

Kim C.

>

> Well Olivia's ped appt was a little dissapointing today. We

> didn't seem to accomplish much and he was running quite a bit behind

> so I didn't get to ask a few questions. The first problem for me

> was that they wouldn't undress Olivia to weigh her and it was cold

> out today so she was wearing jeans and a sweater! They said that

> they don't undress kids that are over 2 years old and I said that

> she's actually smaller than a 2 year old and that we need to know

> exactly how much she weighs... anyway she got weighed fully dressed

> and showed a gain of almost a pound so the Dr. was very happy, I

> said that I wasn't happy and explained why and he said that " I worry

> too much " ... more than a little dissapointing. He said that she's

> in an acceptable range for height to weight but I'll just have to

> let it go I guess even though I thought she was about 4-6 standard

> deviations below the 3rd percentile. He upped her Prilosec to 4ml

> twice a day (this seems a bit high to me) and to stop the zantac all

> together. I guess it just left me a little more confused since I

> wasn't expecting him to change things so much. He wouldn't run a ph

> probe or a GET test saying that " all kids with this syndrome have

> reflux and delayed emptying and there's nothing you can do to fix it

> because pyloro's (sp) and fundo's don't work " . Olivia's not severe

> enough to need either of these but it was not a very educated

> statement in my opinion (humble as it is). It would be nice to know

> just where she was though. We've got a new regime for the

> constipation so we'll hope that it works, we can't get the Miralax

> though.

> He then suggested a high fat, dairy, butter diet.... but she's

> allergic to dairy and soy so he said all of the fries that she

> want's to eat is ok. We do this anyway so no big change there. He

> doesn't believe in Cyproheptadine (Periactin) and said it's useless

> but we're going to try it again soon once the new reflux meds get

> everything under control.

> We'll be going back in a month for a weigh in (maybe I'll just

> take her in a thin cotton nightie? OK, that's the catty side coming

> out, I'm a bit frustrated)

> Maybe it all wouldn't seem so bad if we didn't have to drive 2

> hours one way for a 12 min appt.

>

> Does anyone else have an 18lb child on 4ml of Prilosec twice daily

> (2mg/ml)? The family dr prescribed 1.25ml of Prilosec and she's

> getting 1.5ml of zantac (which we're supposed to stop)

>

> Thanks for listening, I'm feeling better already just writing

> about it.

>

> Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs (I weighed her at

> home in just panties), 33 " , RSS, OI, lots of meds.

[Guest guest]

hey leah!!

maybe you could get something from dr h stating she must be weighed

naked!! that is what dr h gave me at our first visit in ny. it

stated on her note about the visit what was expected at the weigh

ins and how to measure him (since he has assmentry on the left

side). it really makes a difference and i would make a stink over

it!! especially since most meds are based on weight as well!!!

good luck!!

jodie c.

>

> Well Olivia's ped appt was a little dissapointing today. We

> didn't seem to accomplish much and he was running quite a bit

behind

> so I didn't get to ask a few questions. The first problem for me

> was that they wouldn't undress Olivia to weigh her and it was cold

> out today so she was wearing jeans and a sweater! They said that

> they don't undress kids that are over 2 years old and I said that

> she's actually smaller than a 2 year old and that we need to know

> exactly how much she weighs... anyway she got weighed fully

dressed

> and showed a gain of almost a pound so the Dr. was very happy, I

> said that I wasn't happy and explained why and he said that " I

worry

> too much " ... more than a little dissapointing. He said that she's

> in an acceptable range for height to weight but I'll just have to

> let it go I guess even though I thought she was about 4-6 standard

> deviations below the 3rd percentile. He upped her Prilosec to 4ml

> twice a day (this seems a bit high to me) and to stop the zantac

all

> together. I guess it just left me a little more confused since I

> wasn't expecting him to change things so much. He wouldn't run a

ph

> probe or a GET test saying that " all kids with this syndrome have

> reflux and delayed emptying and there's nothing you can do to fix

it

> because pyloro's (sp) and fundo's don't work " . Olivia's not

severe

> enough to need either of these but it was not a very educated

> statement in my opinion (humble as it is). It would be nice to

know

> just where she was though. We've got a new regime for the

> constipation so we'll hope that it works, we can't get the Miralax

> though.

> He then suggested a high fat, dairy, butter diet.... but she's

> allergic to dairy and soy so he said all of the fries that she

> want's to eat is ok. We do this anyway so no big change there.

He

> doesn't believe in Cyproheptadine (Periactin) and said it's

useless

> but we're going to try it again soon once the new reflux meds get

> everything under control.

> We'll be going back in a month for a weigh in (maybe I'll just

> take her in a thin cotton nightie? OK, that's the catty side

coming

> out, I'm a bit frustrated)

> Maybe it all wouldn't seem so bad if we didn't have to drive 2

> hours one way for a 12 min appt.

>

> Does anyone else have an 18lb child on 4ml of Prilosec twice

daily

> (2mg/ml)? The family dr prescribed 1.25ml of Prilosec and she's

> getting 1.5ml of zantac (which we're supposed to stop)

>

> Thanks for listening, I'm feeling better already just writing

> about it.

>

> Leah, mom to 9yrs and Olivia 4.75yrs, 18lbs (I weighed her

at

> home in just panties), 33 " , RSS, OI, lots of meds.